Re: Your best chance

“Glyconutrients are probably your best chance of winning against this cancer.”
 

From my research, I’m thinking they’ll help my body do its job—along with a good attitude, spiritual strength, and good nutrition.
 

“You did not mention its origin or diagnostic name, which might give me some idea of how urgent your need of stopping and reversing the disease process is.”
 

Small Cell Carcinoma of the Bartholin’s Gland, metastasized to the Liver.  This is an extremely rare subset of a rare subset of a rare cancer (depending on who you talk to, either vaginal or vulvar cancer).  Factors that makes it as rare as it is (only 100 cases ever reported) are the point of origin and that it is small cell cancer.  The Bartholin’s Gland is one of two at the opening of the vagina whose function is to provide lubrication.  It went from Stage 2 to Stage 4 in like 2 weeks, so it is very aggressive.
 

“Has the oncologist given you a prognosis?”
 

He was understandably (and admirably) reluctant to do so since those stats don’t take into account so many variables (for example, age and health of the patient).  He did say it was inoperable and incurable (“it always comes back”) and if I were to look it up, the books would say 12-14 months.  That’s not to say it couldn’t go into remission for up to a couple of years at a time.  I did change Doctors and asked the second one about the “no cure” thing, didn’t anyone ever go into “permanent remission?”  He said he didn’t want me to leave thinking he had promised me a cure, but yes, there were “very, very, very rare cases” of permanent remission.
 

A major factor for my case is the liver involvement, since if that goes so does this body.  On initial diagnosis the CAT Scan showed “multiple” tumors in the liver, the largest of which was 4 cm.  It had also become very enlarged very fast (within 2 weeks), so enlarged that I couldn’t hold more than a couple of spoonfuls of food in my stomach at a time without pain (I got around this by eating really frequently to make sure I got the same amount of food).  The good news is that the liver went back to normal size after the first course of chemo and I have been able to eat normally ever since.
 

More good news is that after 3 courses of chemo (a course is: day 1 – Carboplatin and Etopocide, next day – Etopocide, next day (day 3) – Etopocide; Prior to chemo infusion each time I get Zofran, Decadron and Zantac for side effects and on the day following chemo I get a shot of Neulasta to stimulate White Cell growth; this regimen is repeated every 3 weeks, with monitoring of my blood counts, kidney function, etc. in between), the original Bartholin’s tumor (4-5 cm) is gone completely as are some of the liver tumors with the largest (originally 4 cm) now down to 1.2 cm.

My original oncologist also told me that it was “weird,” because with what I had he would expect to see indicators in my blood but my blood looked like the blood of a perfectly healthy person, and the rest of my body was the “picture of perfect health.”  He said that should help me fight the disease more effectively. 

“I assume from the quote that you are not overweight.”

No, I have “skinny” genes, so I am thin naturally.  I am 5’6”, small framed and normally weigh between 115 and 120 pounds.
 

“Have you lost a lot of weight or are you losing weight fast at present?”

“Probably your best strategy, if you are not overweight, is to eat enough to maintain weight and strength.”

Exactly my thoughts on the matter, and I am doing so.

“Your best bet is to support your body's immune and repair systems aggressively. They can annihilate tumors in amazingly short time, once the cancer is no longer invisible to them.”

Ditto.  My conclusion is the same as yours.

I am aware of this and I’m “on it.”  My appetite is great (I’m “pigging out!” J no nausea so far.

“I have observed many cancer patients who took A*****ose and had minimal side effects, some not losing their hair.”

“You may also get into a study conducted by Fisher Institute for Medical Research, which when accepted, you will get A*****ose and other assorted nutraceuticals at about half the retail price. Find it online with a search.”

Thanks for this.  I’ll check into it for sure!  As for getting things at half price, I’m not sure I’d even be able to do that, though, especially at the doses you’re recommending.  Public health insurance is paying for the medical care, and it’s truly a sad commentary that it won’t pay for nutritional support.  However, with my financial situation I don’t know how much of anything I’m going to be able to pay for on my own.

“Because the cancer is stage IV and aggressive, I suggest strongly that you get started ASAP and do a protocol faithfully for a month, then evaluate your results.”

My sentiments exactly!  I am willing to try anything with a good track record that won’t cause harm. 

Thanks for your recommendations.  Unfortunately, the cost of the M****tech products might just prove prohibitive for me with my financial situation.  It’s a shame there isn’t some sort of a program for people in my financial circumstances in our own country.  Anyway, that’s why I’m looking for the homemade stuff.  Oh well….

“Do you sleep well in darkness?”

Other than waking briefly a few times a night (menopausal) I sleep fine.  I did try Melatonin though with no discernible change.  I don’t see the waking as a problem and seem to be getting enough rest—I think it’s just the toll of the chemo battle that’s got me tired.

Thanks for your suggestions about yard sales and getting help from others.  I’m in no shape to be doing yard sales myself right now and not sure that would buy more than a month or two’s supply of the products you suggest.  I’ll see if I can get someone to do something for me, but frankly it’s hard to ask.

Thanks again for taking the time and for your good heart and good wishes!

BaileysMum