Story of Ryan and Stacy Blanco
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Story of Ryan and Stacy Blanco
From: "Kathy Blanco"
Date: Thu Feb 28, 2002 3:42 am
Subject: my story
Story of Ryan and Stacy Blanco
by Kathy Blanco
My story seems as though I am living this life over and over, like a deja vu'. I discovered so many things along the way, that maybe I can share with you, some pitfalls, some things to watch, and something to rejoice over. My son Ryan is now 20 years old and is most medically impacted, with autism and a dual diagnosis of epilepsy. The first signs of anything being wrong were things so obvious, that I cannot even deny, nor my doctor(s) that there was an excrutiating entery into autism for him. He was a normal baby, normal apgars, a beautiful blend of castillian spanish and irish. I remember distincfully, a good friend and nursury nurse at the hospital who fought over who was going to take him to mom. She seriously said there were fights who would. This reflects upon the theory that many of our children enter with beautiful faces, often a theory of those who have autism.
While carrying my son, I was working full time, and I was very stressed out with a high stress job. I would come home so tired, and wondered if it was good for me to do this to the baby. Yet, I perservered, as long as I could. I was just married only 1 month before I became pregnant, woops. Before the pregnancy, I lost a lot of weight, you know, the typical I want to look good in my wedding dress sort of thing, and dang, I did look good LOL. Before we got our marriage liscence, they took a titre check and noticed I did not seem to have adequate MMR titres. So they gave me a quick shot and sent me on my way. Nothing to fear, nothing to even have an inkling about, my life seemed on a new way, a new life. During the pregnancy, I came down with a mild sore throat, and sort of passed it off. Then at the same time, I worked near semiconductor industries, and found some rather scary information about the well water in the area....except, after the fact. I worked in silicon valley, in which there is a possible cluster of autism, right around the time Ryan was born. Well, anyway, I remember distinctfully closing a small office I was working in at lunch time, and simply feeling so exhausted, I would lock the front door, and go to sleep on the carpet in the back room for lunch time. I didn't know what to make of it. The soar throat became worse, and I made an appointment to the GYNO. He did a swab test and found I have MONO. That was really scary. I looked at him and asked him, gee, won't this hurt the baby? He said, I want you to quit work for a month, and seek bed rest, and get off your feet. I was so sick for 2 weeks, that I thought I was going to die. Fevers, trembling in my bed, and when my husband came home, caring for the home and wishing and praying that nothing will harm this baby. He offered prayers in our church, and we felt the Lord close to us during this time. About 5 days short of the due date, Ryan James Blanco was born, with no complications, and an apgar of 9.
He was a good eater, and really, as a new mom, I had no complaints. I did however, notice that every succeeding vaccine that he had, made him react even worse from the previous (this is a hindsight sentence). The obvious line of give him tylenol was overheard, and I subjected my child to the worse cruel fate I could have ever know. I noticed at 6 months a very distinct thought. Why is he not sitting up? He did, but then when he did, he would fall to one side? Years later, I found out this is a distinct sign of mercury poisining from childhood vaccines. He began to not sleep at night, even though words were everpresent, like mama, dada, baba, ju ju, dogee, cat, and a couple of cute sighs and coohs and eye contact in between. I had really no suspicions. Then it was the eating. I have an 8mm film of him, hanging over his chair, begging him to eat, and in fear, I breast fed him to whazoo and back. He was plump and happy. He walked around 13 months, and I did notice a slight hand flap here or there, but just thought, oh, he is being cute and excited. At around 14 months, I began to notice other slight things, but nothing to worry my head over. I got pregnant again, another woops, and was concerned, but was also everpresent with the fact, I had another baby on the way.
Around 18 months, when he had a DPT/Polio on his well baby, I again, poured down some Tylenol to assure a better go through this time. Around that time, 20/20 news programs were airing that P in DPT shots were of worry and interest. I remember begging for more information on this, and asked my pediatrician if we shouldn't just not give him P, rather a DT because of the information. He brushed it all off as if it was never ever the case, or for people not like me, and would be fine. Fine? 11 days after his DPT, he had a sudden rushing temperature, stiff neck, and body, 105 temperature, screaming and pitching for 24 hours, eyes rolling and convulsions and every trick in the book saying, this child is majorally reacting. We took him to the doctor after hours and he gave him phenobarbital. When I couldn't stand the way he looked anymore, even after being sent home, I went into the ER room, and had them do some spinal taps to make sure it was not menigitis. I have very distinct memories of being in tepid baths with Ryan the whole night. One of the interns mentioned, I am going to write down this is a vaccine reaction, but if I did that, I would be putting myself in harms way, but this is undeniably a DPT reaction. I was thankful for his bravery and perserverance. After we were sent home and under consensus this must be a "viral illness", I held the release paper in my hand and told myself, I need to put this away for safe keeping. We had no son for a week. He lay in his bed listless and tired and feverish. He seemed to pop out of it, but into something else.
His appetite even grew more worse. I would take him on little walks with my daughter and notice that he would do things over and over. Then when I took him to church nursery, he would be off in a corner, and not paying attention, and even staring out the window. I came to my pediatrician again and mentioned how he couldn't even push the peddles on his tricycle and how his speech was stagnant, and even sometimes silent, and sometimes there were no words at all. He referred me to a speech pathologist, who mentioned to me for the first time AUTISM. I didn't even know what the word meant. I went to the library, pouring through books, and pouring plenty of tears. I put him into the school early intervention programs, and from there on, Ryan was either regressing, getting worse, or had splinter skills here or there. We went to several neurologists, and had numerous tests done. Around 4 years of age, I noticed other things such as muscle wasting, even bouts of what I call movement disorders, where he would get up in the morning and have this twitching and writhing in his legs. The doctors still didn't know what that was. We then took him to see Bryna Siegal at STanford Autism Research Center. She diagnosed him with PDD-nos. At that time, and yes, I was a busy mom, I had my fourth daughter on my lap as we were discussing the diagnosis for Ryan. By then, I think my heart was a little hardened, and or, I was in shock that this became my life. Four children under the age of 61/2!
We got the written report back for Ryan and noticed one line that shocked me. "Stacy seems to have some movements that I recognize as the beginnings of autism". Back then, we didn't have a whole lot to go on, a little Lovaas here or there, a little first inklings of milk being bad for your autsitic child, and that was about it. No mention of vaccine connection. You see, the next few kids, there were NO problems with the vaccines, and so, I thought, gee, must have been a fluke? I did however, take out PERTUSSIS for every child suceeding Ryan. I thought I had my bases covered...NOT. Sure enough, the signs of autism surely and slowly crepped in, and on one occassion, I remember my daughter stacy being quite ill after her MMR, and within 2 weeks, was throwing up and or diahreeahs from hell. I remember goiing into the doctor and mentioning there was something strange about this. She also had funny rashes all over her bottom, and welts at that. She also had tell tale signs of not sleeping, and losing her langugae, and even bouts of extreme anger, as I remember on one report, that "mother was tolerant during our interview while the baby was pulling her hair".
So, with all this knowledge I had gathered for Ryan, even me, a swave mom, could not even recognize that once again, another child was following the patterns. I put her into EARLY intervention at 11 months of age based upon Dr Siegals report. The early intervention was such a life saver, and so many referrals to good doctors, and interventions were afforded not only for Stacy, but for Ryan. We worked on GF CF diets extensively, as well as were probably the first parents that figured out they had candida to whazoo, and seeked the advice of an immunologist to put them on Nystantin. This was a big breakthrough for both of them, particularly Stacy. We also put them on the FEINGOLD diet, in which we avoided colored foods, or dyes, and even phenolic foods. This was another step into progression. During this time, Ryan began to have facial seizures. We took him to the neuro, and he put him on a KETOGENIC DIET. This really helped things, FOR A TIME. He also put him on a mitochondrial cocktail, becuase we did some extensive tests, that showed he built up too much pyruvate and lactic acid, which are waste products of the kreb cycle. Later I found out, this was also a sign of mercury poisining.
As the years went by, the seizures either kindled or smouldered into something I call, pubescent HELOOO. Around 13 years of age, Ryan began to have Grand mals. We put him on everything we could think of, pharmacology speaking. Some improvements here or there, and breakthrough, but nothing that went, a ha. I then put him on glycomannans and sterolins, as well as various things such as good fatty acids, homeopathic hgh, zinc sulphate, B-complex vitamins to whazoo. This really seemed to stave off the seizures. This along with other ideas of "healing the gut" which would in turn "heal the seizures". Don't get me wrong, there are things left to be done, and some breakthroughs here or then, but for the most part, better than they were, when they were numbering 1-2 grand mals a week.
As for Stacy, during this time, she really started making gains, in which we put the same protocol on. We did, with added things here or there that were her deficiencies, as well as recognizing how PST deficient she was. She just had her 3 year evaluation, and can no longer be classified autsitic, but aspergers. She has a keen sense of humour, and can joke and laugh, make friends, but has some "issues" with social pieces. She reads around the 2-3 grade level and requires no aide in her modified classroom of LD children.
The journey doesn't end here, for we found new information that made all of this come home. As I have expressed, "I was tired" all the time as a mom, and had signs of Chronic Fatigue Syndrome. I unfortunately learned bad news of my mother last year having Multiple Myeloma. That was devastating and sad. The prognosis is pretty good, compaired to someone who has lesions or tumours when they come into it. She is also on the protocol I have outlined for my autoimmune kids. But for what it is worth, I discovered not only is her cancer connected to autism, but also my Chronic Fatigue. I fell upon a website, while researching for treatments for her, and was taken back. I was sure I was on this web site before in regards to autism! I clicked on the appropriate searches for autism and then multiple myeloma. It was there, that I read a report by a Dr Brian Durie, that he saw often complex neurological conditions within the family, even MENTIONING A MOM WITH TWO KIDS WITH AUTISM. I nearly fell off my chair. I called the laboratory web page in question and asked if they wanted to test our family? Would they, they said. I sent in our entire families blood sample, my mother, my father, my sister, herr children, my family in total, four kids, and husband and I. ALL OF US TESTED POSITIVE for THE STEALTH VIRUS. Those with obvious neuro conditions were strong positive, those with moderate signs or hardly noticable to the naked eye were moderate! This was an answer I was seeking. So, your probably asking, so what your saying is, is the STEALTH VIRUS THE CAUSE OF AUTISM? I KNOW NOT. But one thing I do know, the standard PCR and western Blot were used, and you cannot deny what you see. This virus is from POLIO VACCINES, instituted to all back in the fifties and early sixties (the good ole Sugar cube). It is also implicated in frank cancers. SV-40 is what they call it, a contaminated simean monkey virus or CMV. This along with mercury poisining was indeed clues to our family, and I must say, a very interesting explanation not only for the Multiple Myeloma, but also the autism, CFS, Fibro, tics, Bi-polar, Schizo/drug/alcohol problems, dyslexia, ADD, depression. I am sure I am probably describing many families that have autism in them (www.ccid.org ). We are also about to enter the world of chelation therapy, as soon as we get mineral stores up. The tell tale marks of poisning thus far are low minerals, such as selenium and even lithium and manganese, all signiatures of a mercury component.
Since we have 2 with autism, I also have been in many many genetic tests, and or studies. One of the most interesting was the c4b anulle, an allele on the Major Histocompatibility Complex. This gene is responsible for handling VIRUSES, TOXINS and FUNGALS. Those three are implicated in vaccinations. HAD I KNOWN, that they had this immunoincompetance, along with the STEALTH VIRUS, I WOULD HAVE NEVER VACCINATED MY CHILDREN. WE are working closely with CCID, and are about to go on anti virals, such as valtrex, biaxin, acyclovier, or gancylovier. I am currently on Biaxin, said to lower chemokine and cytokine production. We also have done dark field microscopy, and found invasive STILL fungas and candida, so something to work on. As well, it looks as though I may also have mycoplasma infections, which could also be STEALTHY. Ryans blood work almost made the technician lose her cool, and disseminated what she thought was the oddest form of cells she had ever seen, and filling the whole screen, it screamed STEALTH to me.
So you see, I do have some success here or there, but have a lot more to think about. We just had tests done, and found they have antibodies to almost all their brain proteins, and neurotransmitters. They have antibodies to myelin, seratonin and receptor sites, as well as catecholimines and neural axon filament proteins. YOU CANNOT TELL ME THAT THESE CHILDREN ARE JUST PSYCHOLOGICALLY INVOLVED, they are SYSTEMICALLY ILL. They have many gut issues that I keep in check with probiotics, enzymes, fatty acids, glycomannans and everything I can get my hands on that heals the gut. Typically we put out around 1,000 dollars out of pocket for nutraceuticals and supplements. Yes, it is so unfair, but it has made me strong.
I await more news on whether I should have endoscopy's done on my children, as well as other tests, that will further clue to us, what we must do to heal our children. This I can tell you. I am absolutely resolved that if we pre screen our newborns, there may be more than a major few that cannot handle vaccines. I am currently working on a project to have such done, as a simple needle stick or PKU test is done, and will offer these insights in the time coming. I hope this can be put forth to DAN doctors, and thereby a consensus on what alleles of the immunogenetic system will stamp a child "DO NOT DISTURB". My hope and my prayers are that I will quelch this epidemic, and possibly save another child from the life my children have had to endure. Biomedically these kids are so challenged that one inkling of twisting or turning, or changing their diets can set them off, or regress them. This evident when I found out they were more allergic to CORN then GLUTEN in Wheat. Doing Elisa tests and other targeted treatment tests are advisable in my opinion.
My motto as a parent "knowledge is power"
Kathy
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