Re: Incurables Program, Day 17: The Saga Continues

I am one of Jerry's kids.

I have FSHD- fascio scapular humeral muscular dystrophy. I had a late onset. Usual onset is late teens or twenties, I didn't notice symptoms until I was 36. I also seem to have a sporatic version of the disease- no one in my family has any sign of FSH. I wasn't diagnosed with FSH until I was 43, following several years of diagnostic testing and a lot of wait-and-see.

I am now 47. I can walk without assistance, but I walk with a gait similar to that of a pregnant woman due to muscle weakness. I have great trouble with stairs, curbs, and steps of any kind. Stadium seating scares me to death, and I have to use the wheelchair ramp to walk up curbs at stores. I have very weak lower back muscles, and all of my core muscles are weak. This also makes me look pregnant. I can bend over just fine, but I can't get back up unless I walk my hands up my legs and push myself back up. This is troublesome when pulling something out of the refrigerator or pulling clothes out of the dryer. I have very weak muscles in my shoulders and shoulder blades. Characteristic of the disease are "angel wings"- shoulder blades which stick out because the muscles can't keep them where they belong. My weakest muscles are my biceps. I can't lift so much as a coffee cup without using other muscles to support my arms. I can't lift my lower arm up to do an arm curl, even with nothing in my hand.

FSH is a slowly progressive, genetic, degenerative disease. This means my body is becoming weaker and weaker over time. This dystrophy doesn't affect the vital organs as some others do. I won't die from this. As I age, though, the prognosis is that I will end up in a wheelchair and will need assistance to care for myself. The thing that is actually wrong is that I do not have enough of a certain kind of gene in my muscle cells to stop this disease from occuring. The less of this gene you have, the worse is the manisfestation of the disease.

MDA is researching this disease, along with the other 42 neuromuscular diseases. They are doing some tremendous work now that the human genome has been decoded. They are able to grow muscle cells from stem cells, but muscle tissue replacement therapy is probably another 10 to 15 years away. They are working relentlessly, trying to find a cure for these incurable diseases.

A couple of years ago, an email buddy told me about the Incurables Program. She said I may not want to do something so radical, but I thought it would take something radical to cure this. She gave me the curezone web address and some others, and I spent over a year learning all I could about how the body functions and different protocols for various ailments. I looked at several big name natural health doctors' programs. It looked like this worked, and that worked, but I couldn't find anything that pulled it all together. Then I looked at Dr. Schulze 's Incurables Program again.

I listened to Bob Manz's testimony over and over and over again. I read everything I could about Dr. Schulze . Having been a former lay midwife in an unfriendly medical climate myself, I empathized with his trials in having his practice shut down by government officials. I did not write him off as a nut case. I listened to testimony after testimony, and read his e-newsletters- lots of them. I read his bio here on curezone.

Then I just prayed. When the IP was on sale last month, I saw it as a sign. LOL I asked my husband John if we could get it, and to my surprise he said yes. He has been my biggest cheerleader in all of this.

At this point, I can't tell you if IP will cure this awful disease. I correct myself. I can't tell if the Lord will allow me to use IP as a healing tool to cure myself of FSHD. I can tell you I feel better than I have since I was a kid, and that I am regaining a tiny amount of strength. One of the things I am hanging on to is the fact that there is a period at the end of the statement, "There are no incurable diseases." There is not a comma and the word " except."

If there is any person, a single individual, who reads this and contemplates doing it for their illness, I say go ahead and do it. It won't hurt you at all, and I bet it will help you.

With this post comes all the love and prayers and blessings I have. You are precious in the eyes of God, you really are. Start loving yourself and take care of yourself. Find out what life is worth living for, and step out in faith.

-Donna Tweet