Re: Help! Reliable sources of information?

Hi Frank,
Yes, you do need to find a doctor to prescribe the LDN but you'd be surprised how many docs out there are willing to if you are persistent. You see, if they are smart they will realize that you are asking for a much much lower dose of a drug that has been approved for over 20 years at a much higher dose. A lot of docs are confident that is certainly won't hurt you at such a low dose. It is important that the compounding is done right and there are a lot of compounders that are mixing up thousands of these prescriptions now. It must be in a fast release filler. Some are sentitive to the filler that is used and it has been determined that Calcium Carbonate seems to pack too tightly in the capsules which turns it into a slow release so be careful with that. You mentioned Canada? You can call Smith Pharmacy(800) 361-6624 and ask them to please tell you of some docs near you that are "LDN friendly". I have been maintaining a list of doctors and do have a couple in Canada. One in Toronto and one in Markham. Write me if you are interested in those names and numbers. I also could direct you to someone who lives in Canada who's wife is getting a prescription in Canada as well. Some just buy the Naltrexone/Revia from Mexico and just make it in a liquid. I would do this if I had to. I would be happy to tell you my story, which I will be sharing at the LDN conference this weekend in New York. I look forward to that and am hoping that what is said there will be on the website at some point in time http://www.ldninfo.org . I do have RR MS but really do feel that all progression has been halted in the last 3 years that I've been on the LDN. I was going downhill when I decided that it was time to search out something to slow down the progress. I was experiencing some new strange optic problems and my walking would have required a cane soon. First attack of Optic Neuritis in 1984, several bouts of numbness but I think that the endorphins I was producing with a lot of heavy duty aerobics in those days was what held off a lot of progress in those days. I started to slack on the exercise and that is when I started to progress. I sure hope this helps you some. There is no good reason that clinical studies should be done on this so that others can benefit from this. You are right when you say that the big pharma is a stumbling block because they are the ones that front the money for such studies and they would certainly have no interest in this drug because it is out of patent so you know what that means. Feel free to write to me at any time wkendz32@hotmail. I will be in NY June 10 - June 12 for the conference however. Good luck to you {{{hugs}}} JoyceF Tweet