ALD

Hello,

My friends were just told that their 4 month old son has ALD. We are very concerned and want to do any thing we can to help. My friends came here from Mexico,they are US citzens, and they truly only look the medical way. The doctors have offered to do an experimental surgery,which thier insurance will not pay for, only guarnteeing 60% survival rate. The surgery costs $100,000. I feel that there must be different alternatives. Please if you can help or lead me in a direction to someone that can help us out here, I would be deeply touched. He is such a beautiful bright little guy, and the doctors told them he was going to die by ten years of age. I hope to hear from you soon. Thank you.
in light
vanessa