2 Year EC sufferer (long)
Hi! I am a 2 year sufferer who has known about this forum for about a year now, but I have never had the motivation to post here, recently I feel like the inflammation has gotten worse and I know there's people who suffer it too so i'm looking for advice..
A little about me; I have borderline personality disorder (which makes this condition seem so much worse than it already is, and it's pretty bad...) when I was 14 I started getting a red rash around my mouth after eating hot foods or spicey, and it would also get worse if I ate sugar, so I treated that easily with vaseline around my mouth, not even my lips, because they were unaffected at the time.. A few months later, I had gotten white fordyce spots on my upper lip, but no peeling yet. (At this point, I had been smoking cheap marijuana for about 2 years now, but I had quit because it was making it worse.) I had cut my marijuana usage from twice daily to once a week, but at this point, I started getting the top layer peeling off, I even remember how confused I was when I did my first peel, it didn't hurt and the layer was small and thin.. I used neosporin on it and didn't think anything of it.
Okay, so it has gotten progessively worse over the years, the peeling gotten out of control and every few days I would peel off a thick layer, revealing bleeding raw skin. *ouch* I'm 17 now and I still suffer this really badly, I got tired of going dry so I started formulating "treatments" as the steroid creams were not effective.
Causes?:
Hawaiian baby woodrose seeds (I hear people have gotten allergic reactions and swelling from these seeds)
Smoking marijuana
Adderall and opiates
Bad
food reactions
Auto-immuine defiency
Candia yeast infection(?)
Depression and anxiety caused by BPD
Alcohol
Things i've tried:
Supplements-
Calcium
Magnesium
Vitamin complex
Chamomile (This helps so much relieve pain)
Calendula tea (if I don't have any chamomile)
Fish Oil
(Pretty much every damn plant or oils that you can think of availble on amazon, I bought $200 worth supplements)
Topical-
Neosporin (First thing i've tried)
Cortisone
Vaseline
Aquafore
Vaseline infusion containing chamomile and calendula, about 40% jojoba oil. (This is my current formula, I can't go 2 hours without applying it or I start getting dry, painful lips.)
Lifestyle-
Dieting (Nuts, salads without dressing, fish, low carb foods, vegetables, avacados, fruits)
Quiting smoking any herbs.
MY CURRENT STATE:
*EDIT* - I do suffer the "triangle" on my upper lip and the opening, and I have the thin layer of fordyce spots around the border of my stupid peeling skin, there is a bacteria on my face that looks similar to
Acne and it's on my cheeks, if anyone is interested in seeing the bacteria on my cheeks i'll post that.
I've been really naughty lately, going through bad episodes of my mental illness and eating tons of junk food and using more drugs.
Increase in drug use, self-harm, suicidal thoughts.
THOUGH, I have cut back on all that shit, it still haunts me so much daily.
What I want to do in the future:
Try oral medical marijuana (Low THC and high CBD, for the strong anti-inflammitory and auto-immune benifits. Not only does this keep my content and away from other substances, my mood swings and "episodes" are relieved and my family finds it easier to be around me.)
Better diets, going back to my old diet and regular excerise.
Therapy or psychologist (Maybe to help with some of my stress and anxiety)
I was really dissociated and weirded out when writing this so please just reply with any questions and try to help eachother out, thanks if you read it all.