Re: Sick for 9 years. Not sure which direction to go.

Hello, Your symptoms sound very similar to a rare metabolic bone condition called hypophosphatasia or HPP. You can learn more about it from the HPP patient support group that you can find if you search Soft Bones on the internet.

Main symptoms usually consist of pain, fatigue, unexplained fractures, early tooth loss (as an child), low alkaline phosphatase (measured in a standard blood panel), muscle fatigue, lack of stamina, which are several symptoms you shared. Feel free to reach out to me if you have any questions.

You can also find us if you search Soft Bones hypophosphatasia on FB. Good luck and again feel free to reach out to me if you have questions! Tweet