Possibly Nearing the End? How to Recieve Help?

To be denied treatment by a disease that I know is killing me....it's unthinkable. My situation is really rare compared to most people. I suffered unrelenting diarrhea every single day for the past seven years.

My GI never once thought of parasites. I had Prometheus tests for colitis and Crohn's that were negative. Yet she kept me doped up on steroids for 4 of those 7 years. I grew sicker to the point she put a feeding tube in me. That didn't help either. Then she said I must have refractory celiac. I did not.

Now with positive results in hand of trichinella, ascaris, blasto hominis, and toxoplasmosis, candidiasis, amongst pictures of evident parasitic infection, I am in a severe state (dire state) of hyperinfection. I am having some difficulty with breathing just typing this. My legs are wasted away to ascariasis. My intestines are permeable (the GI did say that).

I understand ICU has protocols and I have been doing them. I need treatment like a cancer patient gets, Hospice. Yet there's not a doctor who will believe any of this because it is so rare. I can hardly believe this is my life when I look at myself in the mirror. Of course, I am crying (I'm female), but even a grown man would be crying,

How am I supposed to demand help? I don't need doctors prescribing me antiparasitics. I need doctor's helping me to not die a painful, gruesome death. I wouldn't wish this anguish on a soul.