This is a great idea. I am not sure how to go about doing it though. I currently belong to a wonderful Lichen Sclerosus support group called "Lichen Sclerosus - LS" (note the 'sus' not 'sis' spelling) on facebook. It is extremely supportive and informative. There are some really helpful women and administrators, especially Marjorie Brown, Patti Hux and Nicole Blair. Perhaps we could spread the word there.