Thank you for taking the time to reply everyone, it is massively appreciated.
It does make me laugh how whenever any mentions any kind of progress or improvement then a few people instantly say "Oh you probably haven't got EC, it's just chapped lips"
There is a world of different between someone having dry and even flaky lips and someone who sheds a full sheet of skin on practically a daily basis for 6 months.
I'm sure there are different variants and strengths of this condition but I think everyone that is fighting this knows they don't just have chapped lips.