SLP. I agree with you that there are people who are suppose to have these answers, especially when you consider how the medical community has evolved in research and technology. But still in all don't give up.
The mean and hateful comments are painful I know but trust me there is a God that sees and knows our struggle. We are not alone and we will get to the bottom of these struggles. We have to keep looking for answers though.
Have you tested for TMAU? Have you tried going gluten-free or dairy. Have you been able to narrow down when the smell is worse? Is it right after you eat, or when your hungry. Also are you generating enough acid to digest your food?