I'm so sorry Cimber. That is so horrible. It is upsetting to me (extremely) and I didn't even know her. That is my biggest fear... that I am going to die from this. I'm 41 and it hits too close to home for me. I'm so scared of leaving my kids with no mom. I can't imagine how you must feel. I think all of us need to be more open about what we are going through with friends and family etc. Easier said than done... I've only told a couple of friends and not telling the whole story. I think we should all be meeting up in person and talking about this (not just online). Uniting in a sense and gaining strength and courage from each other. Let's talk more about how to open the eyes of the medical community in this country. Strength in numbers, right?