I know you posted this a long time ago, but wanted to see how your appointment went? Did your doctor believe you and take you seriously? It took me 30 years to diagnose myself with celiac and I then ran into the same problems... NO doctor believed me. I had the blood test done for proof. Eventually, I started going to holistic doctors as they take celiac very seriously.
I have three family members who have been diagnosed as bipolar, yet they do not believe that they have celiac (they do) because their doctors tell them that they do not.
Hope you have found some support. Try going the holistic route if you are still having problems.