Re: I think there are many, many more EC sufferes than we believe

Hello Vunk, and hello to all reading this.
I will start buy saying, i come from South Africa, and i lived there for 25 years, and been living in London now for 5.
Vunk, i remember when i was 11, i got my first cold sore, we were on ouer way to the sea, for the holidays. Swimming in the sea made the cold sore heal so fast, it was grate.
This is why i think with the leave it alone, and swiming in the sea, just maybe make this illness go away.

O.K, i will go back to the age of about 10 years old, i use to use lib balm from a young age. And always used it, and always had some in my pocket.
I started to smoke at the age of 12, and smoked about 10 per day for the first 2 years. Then maybe 15 a day till about 16 years old. Then 20 a day from there.

At the age of 16 i started smoking weed, and drink maybe 6 cans and vodca every second weekend.

At the age of 17 i smoked weed every day, after school.
At the age of 19 i started going out clubbing.
Then i used ecstasy about 2 or 3 times, and then, i got EC.
I was like, ecstasy, this is grate :(
And did not think about this peeling dry lips.
It took me about 3 to 5 moths to stop, and think, hold on, this is getting bad, what the hell is wrong with my lips.
But buy then i was so hooked on ecstasy, i just kept doing E and not seeking help for my new illness.
I cant remember how i first started peeling them, and i cant remember why i peeled them. Because i lost the 3 to 5 moths, being stoned on drugs.

I do remember as soon as i started to think about my peeling lips, they were already in the state they are today.
It happened so fast, its just not real.

Any ways, as soon as i started to get this ec, i would rub my finger after i had a bath, over my wet lips, and the infected part, would come off, the skin.
This made them look smooth and normal, but i needed to use lip balm all day, and they were red, and the skin is raw.
I just kept this to my self, and did not tell any one for 2 years.Rubbing them every day in the bath.

I spoke to a doctor about this after 2 years, and he said i had lichen planes.And up till 3 weeks ago, i did always think i have lichen planes. But found this site, with google images, for fordyce spots. Then i saw a photo of some one with dry peeling skin on his lips, and knew i found what it is i had.

I have never try any thing after the doctor said i had lichen planes, because it cant be cured.So i think, because it cant be cured they say.

I only once in 2004 try the leave it alone, and did so for one month, then gave it up, as i needed to get out of the house, so started peeling them in a hot bath every day.
And have been doing so every day till today, and every day.

I stopped doing ecstasy after about 1 and a half years, from when i started, so age 21 i think.
I stopped smoking 3 years and 6 months ago.And weed at about age 22, i stopped.
And i stopped drinking two years ago.
And none of this has made any, nothing in difference to how my lips peel.

There is one more thing, i have small white marks on my upper front teeth.
And never smiled like normal, always hiding my teeth.
And i hated God for this.
I swore at God in my mind a lot, and if you read psalm 52.
This is a strong reason i think i have ec, because of what psalm 52 stand for. Maybe i am mad, no one knows.
Look, i made my peace with the lord, as if some time ago.

One last thing, i can live with the ec, its the anxiety disorder, that i have today, that s what is killing me, and the anxiety leads to severe depression.

So this is my 11 years of hell storie.

I will also pray tonight, as i need to pray more my self any ways.