lbinns, I'm so sorry for everything that you have gone through for so long because of this stupid lip condition. I can only imagine the despair... I consider myself lucky that I realized fairly soon that something was very wrong and decided to do my own research (as I always do). After seeing some of the photos in the gallery here, I freaked out! I didn't want to let it go that far so I had to do something quick.
Thank God I have some prior knowledge of alternative therapies which allowed me to come up with this protocol. It would make me so very happy if it helps you and others.
Hang in there, THERE IS HOPE.