also have you asked your doc about useing tacro ointment twice a week for a long period of time even just to manage ec? i also have troubles drinking out of a glass. my lips aernt sensitive but the skin that grows isnt strong enough to hold and becomes a little bit white and sometimes just comes off when i drink a glass of water its so annoying!
do you still get the white line underneath your top lip? when you wake up or have a shower? this line is actually skin. its cant mend to the lips for somereason and kind of rolls and becomes the white line its very frustrating!