Re: Psuedo Tumor Cerebri - Are There ANY Cures?????

Hello everyone...I am a 38 year old woman who has been fighting this illness for 7 years now. I still get spinal taps that only gives me relief for 3 days, had the VP Shunt put in 4 years ago, have had 4 surgeries now because the shunt keeps clogging, and they want me to have a fifth surgery that I now have put off for three years because I'm tired of all the sticking and prying...My headaches are worse, my neck and shoulders keep pain, eyes hurt daily due to sensitivity to light, ringing in ears, and blurred vision off and on...The doctors just keep sending me to other specialists cause they tell me there's nothing else they can do...I have been on 30mg morphine for three years straight every three to four hours but took myself off because my immune system became immunned to the pain medication, diamox three times daily 750mg, elavil to help me sleep because of the pains 100mg, lyrica but had an allergic reaction, neurotin three times daily 300mg but had an allergic reaction for muscle spasms in my legs,pot chloride tab 20MEQ daily=1 tab....I continue to have these pains and don't know what to do anymore.