new here

hello everyone,Im a chinese and Im sorry to my bad grammer,I have Exfoliative Cheilitis about half year,it almost make me lose everything,Im very happy to find the forum,i want to know how many people have the bad disease？As far as i know,there are a lot of people have the Exfoliative Cheilitis in china,chinese doctors cant slove the problem,we feel helpless,how about yours? do you turn to media or scientists for help? I think the medical community pay no attention to the disease,maybe they dont know our pain.........