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14 y
Any way to fight CMV retinitis and blindness ?
Hi. I'm in my early 30s and I continue to suffer from undiagnosed symptoms.. but it really seems like I must have aids. no, I;m not some hypochondriac and im of course open to other ideas. I realize that if not aids however, i must have something else or some assortment of other conditions which are causing me progressive symptoms of retinal detachment. (I see more and more floaters across my vision and get various eye pain+sinus).
I understand the CMV virus is the most common cause of blindness for people with comprimised immune systems (not just aids). Everything I've read about this says they give you these horrible antiviral drugs which slow down the progression of the disease (but which also cripple your existence) and that regardless, you are still not able to fight off the CMV so... eventually you still go blind. :(
just wondering if anyone knows of any alternative way to fight this ? Is there any hope? I've read into eyebright and it seems like a good place to start. I try my best to keep my diet healthy but its really hard. I take about 1500mg vitamin c a day with green tea extract and various amino acids and an occasional multivitamin. I have an eye appointment mid-august and I hope that they will be able to see something wrong and give me some options at that point... before i do go blind.
If you're wondering, I've been tested for aids about 3 times within the past 8 years. The tests have always been negative but i continue to decline with more and more horrific symptoms year after year. I have a friend who used to be a lab tech and she explained to me that the window for detecting the hiv virus thru testing is actually more difficult than the public is led to believe... and that it actually goes dormant and is undetectable for a long time. If you miss a chance to detect it after the initial time period, it wont even show up on a test... until it fully activates years later. I also realize that eventually it will show, and that therefore it may show for me now... but I am scared again now to get retested. heh.
any suggestions or advice appreciated.. especially if you have any ideas about how to fight CMV+HIV to prevent blindness. dying is bad enough.. but losing sight before you die has got to be the most horrible thing that can happen to someone :/
thanks so much