Re: lichen sclerosis sucks!

I'm so sorry you are going through this- I am brand new to this forum and thought maybe my experiences could help someone. Your post caught my eye. Long story short- Diagnosed with vulvar cancer in February 2010- also lichen sclerosis- Had severe itching for 25 years, creams, etc. and nothing worked. Prescribed by doctors too! Finally when I had lesions growing on the labia, I went to gyn again. Biopsy revealed nothing but non-viral, benign papillomas. She sent me to a gyn oncologist to do the excission of the area and get a second opinion. excission was done and pathology revealed veruccous carcinoma- not papillomas. They couldn't tell unless the biopsies were deep. Another radical excission just last week. Lymph nodes came back clear and 2nd surgery came back clear on all margins. Moral of the story, try and get an appt. with a gyn oncologist. They are experts in treating lichen sclerosis- Try and get a younger doctor( not that older ones aren't good)- it's just that mine is only 32 and really on top of his game with all the latest info. He is putting me on clobetasol propianate( spelling might be wrong)- It's a steroid - I've tried it already and works like a charm. Constant monitoring is needed also. Best of luck to you and don't let this get out of hand( which mine did and yours too)- It can turn into cancer and then you'll need to have done what I did. It's very hard to control but a gyn oncologist can help. Tweet