Re: Lower leg bone pain (my story)

Your post is really old,, but maybe somebody reading can shed some light on the situation. Please exscuse me if i post a long story..its my first post...and i dont know where else to post this..and i feel like all the information is important...


i have the same pain you describe..ever since i was little i had pains in the legs from about the knee down, someitmes had it in my arms from shoulders to my wrists... in 2006 i had my second child, followed by a gallbladder removal surgery, and then i went on my first ever birth control... i dont know if it was from the birth of my second baby...the surgery and all the Antibiotics i was given (was jaundiced cause a stone tried to pass and got stuck..i didnt go in for almost 2 days!) or if its from the birth control but my leg pains started to get more frequent, more sever..from the feet sometimes up to my lower back, my arms to my upper back...basically was in pain..and it started to get worse and worse until it was daily and it sucked! I was 21 at the time and i hated feeling the way i did..i started becoming depressed and crying over my pain..no fun...

Now i have researched and spent a lot of money on supplements, went to 3 doctors, 1 naturopath, a rheumatologist, an orthopedic, 2 neurologist...and im still working on it...lol.

Let me tell you..the first doctor took blood work..said i was normal, scratched his head sent me to neurologist #1..neurologist #1 ordered som e more blood work...said he was going to invent a new disease after me..basically laughed in my face and made fun of me...he didnt believe me...but then he wanted to medicate me. no thank you... jerk. (this was fall of 2007)

Then the year after in 2008 decided to try a new doctor when things just kept getting worse.. new doctor ran all blood work..said i was fine..wanted me to try lyrica..i was desperate but insurance only covered neurontin..so i went on neurontin for 2 months... no help..i gained 12 lbs. yikes. he sent me to an orthopedic (i also have a knee that bugs me)..orthopedic thought maybe i have depression...ugh. no i dont..except when i hurt i am mad.. anyways... did physical therapy for my knee..got off the neurontin...doc gave me tramadol (works really good for me for the pain..but its addictive and i want to help myself get better not rely on pills) had a lower back mri..i have some mild disc bulging and spinal something... they said it wasnt a big deal....

doc sent me to neurologist #2 (fall 08) he did nerve conduction tests...everything was great, did a muscle somehting test was good (poke needles and small shocks), he said i am fine, he doesnt see anything neurological with me but thinks i have some rls in addition to my bone and muscle pain... ok. gave me requip...tried it for 2 weeks and felt like somehting was sitting on my chest...really creepy. Neurlogist said he didnt think i had anything and that i should go see a rheumatologist. fine.. its like customer service...they send you from one to the next..lol. anyways i asked him about fibromyalgia.. he said he doenst believe in fibro and that it is a made up thing by fat lazy people who drink their cofee and eat their junk food...no joke...that is what he said to me..i am not overweight. i weight at my heaviest 125 and im 5'5"...anyways....

doctor then sent me to a rheumatologist. (2009)
rheumatologist said i looked ok (ahhhhhhhh i feel look and everything come back ok why am i freaking feeling like someone pouned me with a meat mallet? sheesh)
the guy said it sounds like fibro..but i dont "fit the fibro" criteria..meaning i dont flare up the next day if i did too much the day before, i also dont have the "tender" or "trigger" points...but he decided to use the diagnosis "fibromyalgia" for me... he wanted me to try something for pain...but when he saw i did really good with tramadol he prescribed that for me since it was safer than an antidepressant (he wanted me to try cymbalta)... anyways..

researched on my own, read about leg pain happening from, birth control use (estrogen dominace), candida (using to many Antibiotics ....i fit that a lot), being acidic, being toxic, leaky gut, thyroid issues, gluten intolerance, dairy intolorance...i mean and theres more.

I did a full month of candida diet along with caprylic acid, pau darco tea and something else...i felt better but not still myself.. talked to a naturopath doctor..spent $400.00 on detox kit supposed to detox everything..ate only what was given to me off the list (mainly veggies and jucing)...felt like crap that entire month i did it..so weak ( i dont feel good when i dont eat protein)didnt see a big difference... after that i went on a candida diet again, also bought some progesterone cream from sprouts to see if maybe im estrogen dominat...candida diet seems to help...but i am not sure if its because of the actual candida..or the eliminating of bad all processed/gluten/sugary foods.... u see what i mean?

i still wasnt happy with that diagnosis so new doctor this year...she listened to my symptoms and complaints and told me that she doenst htink i have fibro because i dont fit the criteria and i also dont have the tender points and the next day flare up... i am only trender and knotted in my back..but she said thats stress... so i dunno...

oh and this year i tried accupuncture too...didnt help.. i only felt $100.00 poorer..lol.

oh man..so thats pretty much my story in a nutshel.. i am going back next week to the new doc again. i am currently doing the candida diet again..week 2 right now, although i have cheated..but i am using fivelaac this time...

I also wanted to mention that i got off birth control in jan of 2009...so i have been off those... i only take from time to time tramadol..no other prescription drugs.

My pain also got better (the deep bone pain) when i started taking vitamin d3 at 10,000iu a day...deep bone pain gone now...bu i still have the muscle pain.. (maybe its muscle tendons and ligamnets and nerves with it too//i dont know.." it just feels like flu, and its achey and it hurts and makes me crazy and i cry when its bad and i pray and i wish i would just be better again...

One thing that helps is prayer, my husband is so supportive..and i have a little brother who is paralyzed..and when i think i have it bad.. i think of him and others who are paralyzed and how lucky i am..an i thank God that even though i hurt and have pain its because i feel my legs and i can walk and im not paralyzed or in a wheelchair.

Anyone with any insight to my story please please please help me out.. i want to be me again! Tweet