First, I want to say how sorry I am to hear that you're suffering so much. You certainly have tried a lot of different things. Did any of them help at least temperarily? The best I can do is suggest you check out the book "Dying to Get Well" by Shelly Keck-Borsits. You can download it free or buy it from http://www.abcinternetmarketing.com/dtgw/order.html
You can also find it on Amazon.com. It may or may not help, but it's worth looking into. I have lots of health issues, but nothing like yours. I follow much of what is in the book and it's helped me a lot. But as I said, my health problems are mild by comparison to yours.