The interview went alright I think; I explained the symptoms, said the name, possible causes, told her about exfoliativecheilitis.com and this forum, my story etc.
It was a bit hard though for me to be precise and coherent, because there is so much emotions associated with this experience, too many doctors, too many treatments. I hope she will edit out all my "uuh" "eeh" and "hmm"'s :)
Anyway, I did my best. It will air on tuesday 29 september. Since it will be in Swedish I will transcribe it for you guys when I have the time. I really hope it will lead to something positive for all of us.