Were you self-supplementing before you decided to get tested? I ask because I'd like to self-supplement. I just moved to the Netherlands, and it seems like they take pyroluria more seriously here; it's called HPU here. I haven't been tested yet but I have many of the symptoms. It sure would explain a lot if I were diagnosed. I don't have health insurance yet here though and I'm really sick of some of the symptoms so I'd like to self-supplement for now. Zinc and B6? How much?
Did you ever get your results? Maybe they could mail them to a friend who could then mail them to you?