I also have this. I have had it since I started walking at age 1. I have been to several doctors including children's hospitals and many other places where no one seems to really know either. My most recent doctor told me the name of a very rare disease that occurs like one in a million. I couldn't tell you the name off of the top of my head. I see a podiatrist every few months to have them shaved down. Its the only treatment that makes it bearable in anyway. Does it hurt you a lot too? How have things developed since you posted this?