I need a doctor that will understand and help me!

Does anyone know a doctor in Southern California that knows what Pyroluria is? I'm pretty sure I have it, but can't get tested! My doctor has no idea what I am talking about. Also, I have an uncle that has porphyria. I understand that these two diseases are related, but I am having problems finding information on the relation. I've seen people say that pyroluria is a schizophrenic form of porphyria, but again, I can't find any info. Does anybody know anything about this, or know of a doctor or specialist that would? Thanks! Tweet