Please see Arun Nagrath (scientist42)'s response below to my post entitled, Upcoming Conference Call Topic, Parenting a BO Sufferer.
I wholeheartedly support anything that may serve as a fundraiser to promote real research to find a cure.
Hi Arun, Cabel, and all,
Thanks for your vote of confidence in our upcoming discussion on 'Parenting a BO Sufferers'. I hope I can live up to your expectations :)I am really looking forward to this experience.
If someone can help us figure out how to record this call, we may use it for future reference.We may even write a book from it in the future to fund significant research to find a cure.In what better way can we raise awareness of our cause.The world really knows very little about a sufferer’s daily struggles, needs, and typical living conditions, not only in society but also in family life.
Some of us are more technically inclined and have the capacity to make this happen for our cause.If you don’t step forward and try, it won’t get done!
AWARENESS, COMMUNICATION, AND FUNDRAISING ARE THE ONLY KEY WE HAVE TO A CURE!If we wait for any existing lab to come forward to research without large sums of moneys, IT WON’T HAPPEN IN OUR LIFETIME...It is that bleak folks.Please come forward and help, we owe it to ourselves and our children.I guarantee that without more involvement from others, things won’t get moving.
Incidentally guys, this kind of conference should really be taped because, believe me, this kind of thing has never really been talked about before! Anyone know how to do it? We could be selling our stories for millions and buying all the research equipment we will ever need!
Guys, I think this will be a very interesting story. I look forward to Sunday. I assume Cabel will be at hand to probe further and ask all the right questions.