Thank you so much for bringing up this very important point. Ideally, it is so very important to verify and reconfirm when the odor comes and goes. Keep in mind that not everyone can smell each sufferer's particular odor that perhaps others can smell. So, unfortunately, it's important to keep trying to find someone who does, in order to be certain and to live in reality as opposed living in fear of the unknown.
In fact, it is so important to have someone to give you feedback, and could be yourself if you can smell your own odor, that Arun wants only people with this support system to participate in his research.