Well I checked this Porphyria forum, started 28 months ago, but no posts in it. It looks like I'll have to give it a jump start.
They figure if it wasn't for PCT, there would be no vampire legend, and you would all be drinking tea . lol
Symptoms: Clear blisters on face and hands exposed to sunlight, easily bruised skin, slow healing skin trauma, pissing heavy, colored, at times purple.
Here is a link to the American Porphyria foundation to get started.