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Pleaes read this message form Cheryl M.!
 
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Published: 17 y
 

Pleaes read this message form Cheryl M.!


Hi Everyone

I just want to let everyone know that my story about my life with
TMAU is finally up on the NORD website. www.rarediseases.org.
Click on " read other one in a million" stories.

I have to personally thank Camille for doing a fabulous editing job,
and Sandy for your always valuable input.

This is not just my story it is ALL of our stories, and my hope
every time I do anything these days is to increase awareness/
increase funding.

Thanks All

Cheryl

http://www.rarediseases.org/oneinamillion/home

ps. Some background for those who don't know Cheryl:

She is the one that started the TMAU Research Fund that is held at
NORD. To donate or learn more look in the files section or ask.

Secondly, Cheryl was in a TMAU documentary last year on Inside
Edition.

Now, her story has been choosen for NORD's ONE IN A MILLION:
PEOPLE WITH RARE DISEASES.

Cheryl, thanks for standy up to the plate to help us all.

 

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