I really like the idea of someone setting up a blog (thanks Mary) and thank you Arun for supporting it as well. What we truly have is a need for unity. Anything that can unify us will be helpful because we can accomplish much greater things when we have much greater numbers.
This was my idea with the conference calls, and I think we have accomplished a greater sense of unity because of the calls. Our last call had 69 callers represented in 3 different countries and 2 continents.
We are beginning to see new levels of support and a whole new level of communication. Let's have as the goal of our increased communication a greater sense of unity so that we can raise awareness of these BO conditions and eventually find a cure. Anything that unites the boards and helps us communicate (blogs, conference calls) are a stepping stone in the right direction.