Re: seeking onother LS sufferer to talk to.

I have been diagnsed with LS for over 25 yrs and I am SOOOOO mad right now that I could bite nails. NO DOCTOR, NO SPECIALIST, NO NURSE.. NO ONE EVER TOLD ME WHAT COULD HAPPEN. I was given creams, ointments, pills and regular checkups and assured the disease was under control.
I have not been sexually active for 10 yrs and now I am about become involved with a wonderful man that I love with all my heart and I find out that sex has become totally impossible. My vaginal opening has all but totally fused closed making intercourse nearly impossible. Anything more than the size of my finger will not enter without SEVERE PAIN.
I just want you ladies to know that you have to stay sexually active, or use Medical Dilators or even vibrators to keep the walls from closing.
I am on the hunt for an EXCELLENT doctor in the mid west now... I understand there is some type of Plastic Surgery to correc this defect.
I hope some one will see my post and answer if they know what I can do.

Sadly, but always optomistic...

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