Dear Tracey,

I read with interest your message concerning the connection between milk protein allergy and seizures. My five year-old grandson has been diagnosed with left frontal lobe epilepsy (seizures began occurring when he was 2 1/2 years old). Initially seizures were controlled with Tegretol, but close to his fourth birthday, he began having seizures once again. His condition has continued to worsen and despite trials with a variety of medications, control has not been achieved. He is now on Tegretol, Depakote, and Keppra. He continues to have break-through seizures, ranging from minor staring episodes to grand-mal seizures. Diastat is used to control seizures that continue beyond five minutes.

There is a profound history of milk-protein allergy in our extended family, ranging from gastro-intestinal distress to rash, to "milk-insomnia" which my daughter (this grandson's mother)had as a child. She also had febrile seizures that she outgrew at age five. We were able to control her insomnia by keeping her on a dairy-free diet. As she grew, she appeared to tolerate cheese and yogurt, but was not able to eat these foods while breast-feeding her own children. Each of her three children(our grandson with epilepsy is the second)has been intolerant of milk products as an infant.

I would appreciate any insight that you could give me concerning the relationship between seizures and milk-protein allergy. Has your daughter remained seizure free on the dairy-free protocol?

Thank you for your help!

Kathy Smith

Hi Tracey...
How is Ashley doing now? Do you still have her on dairy free?
Kyle is having seizures everyday again. I think it has to do with his bowels though.
He has always had this problem, from when he was 4 months old. Between his bowels and these daaaamned seizures..I am about out of my mind.
I really feel that it is all relative.
Because when he is all cleaned out.He has less seizure activity.
NONE OF THE DOCTORS that he's seen can pin point what the hell is going on ..and I've about had it...or couldn't ya tell?? lol
Hope ya can steer me in the right direction.
have a great day
Dee

I am a 2nd year med student and just saw a patient who had gone 1 year without seizures after abstaining from milk. Could very well be as you say.