I think im cured 
Hellothere1995
6 y
4,361
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I never like to get my hopes up or jinx myself but i think im cured. The last time my lip peeled was about 5 days ago and it shows no signs of peeling. Before, it would peel every 1-2 days.
Ive had this condition for about 8 years and have tried EVERYTHING. u name it, ive tried it. so if your in the same position, definitly give this a try because i know it dosent seem like much.
I started noticing it was getting better about 3 weeks ago, ill put everything ive used with the likenesses that i feel that it contributed towards my lip being cured.
- 2 huge multivitamins a day. im 20% sure it had a significant impact.
- epaderm. I am 100% this contributed to helping cure it. As soon as i started taking this, my lip got alot better. I got this on prescription but im not sure if u can get it over the counter. It comes in a huge tub, i applied it once in the morning and at night.
- dovonex. I started taking this about a week ago. I got in on perscription. im 50/50 if this did anything because it hasnt peeled since i started. But it was getting better anyway so im not sure.
- Stopped touching it. This definitly had a big impact, before i would say, i dont touch or pick at it when in reality i didnt realise how much i actually did and it was extreamly hard to stop.
Any questions feel free to message me
- Re: I think im cured longterm
6 y
3,259
This is a reply to # 2,418,136My guess is that it' the Dovonex since it has also decreased peeling in others who tried it. I treid to get a prescription for it some time ago, but my pharmacy doesn't carry it. Are you in the USA?
- Re: I think im cured Hellothere1995
6 y
3,046
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This is a reply to # 2,418,205Im in the UK, I would keep trying because my local pharmacy didnt have it either. The 2nd one was bigger and did have it
- Re: I think im cured Hellothere1995
6 y
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- Re: I think im cured Timeheals101
6 y
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- Re: I think im cured Hellothere1995
6 y
3,141
This is a reply to # 2,418,349Still no sign of peeling. The triangle on my upper lip has gone too. I dont really feel comfortable posting pics but they look normal
- Re: I think im cured Timeheals101
6 y
3,019
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- Re: I think im cured longterm
6 y
3,023
MoreThis is a reply to # 2,418,364Oh, it's not that my pharmacy didn't have it in stock. They said they didn't accept any health insurance to cover that cream and it costs $400!
I'm in the USA. Did your insurance cover this cream in the UK?- Re: I think im cured Hellothere1995
6 y
3,047
This is a reply to # 2,418,577Advertisement
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We have free health care funded by tax in the UK. So pretty much every prescription costs the same price, about £9, which is like $15. So thats what i pay for every item.
Im sure theres a way to order this online overseas or something- Re: I think im cured longterm
6 y
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- Re: I think im cured Hellothere1995
6 y
3,074
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- Re: I think im cured longterm
5 y
3,139
MoreThis is a reply to # 2,418,926NO SPECIAL DIET OR SUPPLEMENTS WITH THIS!!! I've been on this forum a long time with lots of theories and treatments. Whatever I tried, some things might have made my lips stop peeling but they eventually still felt hard or dry. That's until I recently tried Dovonex ointment. The company stopped making this brand name or only make the generic named calcipotriene ointment. I read that you only need to apply it once per day (applying it multiple tims will not speed up the healing process), and it takes about 2 weeks use for the fast cell buildup to stop.
I think this will change most suffferers lives for the better. The only problem is it's hard to get insurance coverage for this ointment in the USA. However, you can buy it cheaper with GoodRX discount card you can print off the Internet (price about $100 for 60 gram tube compared to $400 retail price).
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- Re: I think im cured jimmybimmy
5 y
3,024
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This is a reply to # 2,419,703After managing his Psoriasis on his lips with a topical steroid, they manage it with calcipotriene. Since exfoliative cheilitis is not an inflammation problem topical steroids don't work for us but calcipotriene changes the way our skins cells replicate.
"During the follow-up, the patient presented several exacerbations of skin lesions coexisting with labial lesions that had good response to calcipotriene."
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3157799/
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- Re: I think im cured jimmybimmy
5 y
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This is a reply to # 2,420,160Calcipotriene is not the only medication that works by changing how the skin cells grow. I found Ichthammol (Ichthoderm)
- Re: I think im cured jimmybimmy
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- Re: I think im cured #136856
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This is a reply to # 2,419,703The over-the counter alternatives--
From Wikipedia - "Calcipotriol (INN) or calcipotriene (USAN) is a synthetic derivative of calcitriol, a form of vitamin D"
I've used the liquid capsule vitamin D supplements (in olive oil) - you can easily pierce a capsule and smear the oil on your lips.
The Epaderm listed on this original post is also paraffin wax mix.
It'd be worth mixing vasoline and vitamin D3 oil capsules so see if you can achieve the same results.
I'm thinking 2tblsp vasoline to 10 x 5000 iu vitamin D3 capsules.
Vitamin D3 strongly reduces the inflammatory response, so there you go, a bit of correcting/putting in check the immune system at the lips.
- Re: I think im cured jimmybimmy
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- Re: I think im cured longterm
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- Re: I think im cured Hellothere1995
6 y
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- Re: I think im cured longterm
6 y
3,054
- Re: I think im cured Hellothere1995
6 y
3,047
- Re: I think im cured longterm
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3,023
- Re: I think im cured Timeheals101
6 y
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- Re: I think im cured Hellothere1995
6 y
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- Re: I think im cured longterm
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This is a reply to # 2,418,136Anyone who is unable to see a doctor for a Calcipotriene ointment prescription or get it covered by insurance should try the Ichthammol ointment and discuss results here. I just looked it up and it's over-the-counter with price under $10. The directions stated the Calcipotriene ointment should start working in 2 weeks, but for me it took about 3 weeks. So, I would say see how your lips look after a month of use.
- Re: I think im cured longterm
5 y
3,634
This is a reply to # 2,418,136Advertisement
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I don't know what's up with this forum since most of the time I'm unable to reply to posts unless I reply to the very first post in a thread.
I thought this Calcupotriene ointment was safe since I hardly saw any side effects listed online. Also, I'm already low on vitamin D so it seems like a good thing if this ointment increases my vitamin D level. I just don't know if it will make all of my skin or only my lip skin more sensitive to the sun?
Here's the possible side effects listed with the prescription:
Tell all of your health care prvoders that you takre this drug. This includes your doctors, nurses, pharmacists, and dentists. Even though it may be rare, some people may have very bad and sometimes DEADLY side effects. This drug may cause high calcium levels.
Why do you think some people have deadly side effects? Drug allergy or high calcium?
- Re: I think im cured TomSins
5 y
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This is a reply to # 2,418,136Can you please provide pictures, so I can see your progess and be encouraged. thanks.
- Re: I think im cured longterm
6 y
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