To the celiac not doing better on gl... 
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"There are some people for whom a diagnosis of celiac disease is made, and they don't do well. So why is that? The usual reason is that they are not sticking to their diet.
The other possibility, for perhaps not doing well, is that they do not have celiac disease at all. And what do I mean by that? Well, there are lots of things that look like celiac disease but are not. So we as physicians have to be detectives. This is especially true in the pediatric group and less so in the adult group. The condition of tropical sprue is caused by bacteria that are damaging to the intestine. The small bowel biopsy looks similar to that of celiac disease and those patients have steatorrhea.
And there are certain immune deficiency diseases with malabsorption. In these patients, bacteria will create an intestinal lesion that looks quite similar. People who are starving get very short villi. Gastroenteritis which is another childhood disease, or cow's milk allergy or soy protein allergy and even giardia can cause blunting of the small intestinal mucosa. So if someone comes in with diarrhea, malabsorption and they get a biopsy and the diagnosis of celiac disease is made and they don't do well, these alternative diagnoses must be considered."
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We basically have proteins, carbohydrates and fats. In celiac disease, there is a malabsorption of all of these. This is because it is not like a patient with pancreatic disease when they have fat malabsorption primarily. The problem is that whatever you are ingesting cannot get into your body because the lining of the intestine is inadequate; you have malabsorption of everything. You have seen the pictures of babies in Africa with big bellies; that is protein malabsorption. From celiac disease you can get:
protein malabsorption
muscle weakness
edema
malabsorption of vitamin D which is a fat-soluble vitamin
hypocalcemia from which you will start to twitch and your bones will get thin
vitamin A malabsorption
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This is a reply to # 2,365,357i can know for sure that there is no gluten slipping into my diet because i have taken it the abolute extreme.
i dont eat processed junk foods, dont eat out, dont let people cook for me, dont eat oats, dont eat quinoa, check every label, got all new kitchen utelsils, toaster, blender etc. have checked every beauty product. im a perfectionist and i've spent the last 9 months cutting out every possible source of cross contamination to ensure that is not what is stopping me from getting better.
i am aware there are many causes of villi damage. there is a whole list here at 5.8 "Differential diagnosis"
https://readtiger.com/www.worldgastroenterology.org/guidelines/global-guidelines/celiac-disease/celiac-disease-english
however my blood test results were so extremely positive for celiac disease every doctor i have seen has said they have never seen antibody levels so high.
those levels (ttg iga, ttg igg, dgp iga dgp igg) have slowly come down the the normal range over the past 9 months which means i am responding well, my body isn't producing any new antibody and no gluten is sneaking in.
doubting my celiac diagnosis is probably the worst thing i could do.
i am getting results tomorrow from a specialist to find out what else is causing me to be sick.
thank you for the other suggestions. i might start taking multivitamins on top of the ones iwas deficient in since i am not taking vitamin a
- Hypersensitivity White Shark
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This is a reply to # 2,365,486Beside gluten, you can be intolerant or hypersensitive of just about anything else, the list is really endless, and as far as I know, you can take many different igG and igE tests and never pick up 100% of all possible things you are reacting to.
To find the list of all foods you react to, you must adopt the extreme Elimination-Rotation Diet , most likely start with several days of Water Fasting or with something similar to water fasting, like drinking just a very simple soup made from one kind of vegetable, or one kind of fruit or just a simple vegetable juice for several days until all symptoms are gone, if ever.
To eliminate any possible trigger from your immediate environment, like from your home, the easiest way is to move somewhere else, to some cottage on a mountain, to a tent on a beach or something similar. Take with you nothing from your home.
If all the triggers are eliminated properly at the same time, your symptoms may improve already after a 2-4 days.
Seaside is a good place for those who react to pollen and dust, air from the ocean may be 100% free from pollen and dust.
The biggest problem with elimination is when people who are intolerant of several different foods or other factors eliminate only one of those factors, and of course, get no improvement due to the fact that not all of the major triggers were eliminated at the same time.
If you have 10 small sharp stones in your shoes making sores and causing you to bleed while walking, elimination of just one of the stones may improve the situation a bit, but will not solve the problem, not until all of the stones are removed from the shoe.
If you react to gluten, soy, eggs, strawberries, tomatoes, bananas, cat dander, laundry detergent and pollen, elimination of just gluten may not be enough.
Some people have to get rid of their cat (and wash all the indoor for several days ), and maybe have to change the laundry detergent or have to get an indoor air filter to eliminate pollen and other particles.
If you are a person who is hypersensitive to one thing (you already know that), statistically, ods are in favor of you being hypersensitive to more than just one single thing.
WS
- Re: Hypersensitivity longterm
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This is a reply to # 2,365,489I can understand you not getting any better on a gluten-free diet, but I don't knwo why you're getting worse. That's the mystery. However, you may not have another automimmune disease because it all could still be related to celiac disease. Not everyone gets better on a gluten-free diet. There are several articles about this. Here's a few articles.
http://www.myorganicjuice.com/cured-celiac-disease-eating-bread/
http://healthnowmedical.com/blog/why-do-some-with-celiac-disease-never-heal/
http://scdlifestyle.com/2012/03/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/
- Re: Hypersensitivity White Shark
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This is a reply to # 2,365,498A simple reason why any celiac would get worse on gluten free diet would be a replacement of gluten foods with foods that you are still intolerant of, even more intolerant than gluten, like corn, or oats or rice.
Being celiac does not automatically mean that you can tolerate corn or rice or oats or whatever else you are eating.
There are people who are sensitive to wheat and gluten, but are even more sensitive to rice. Rare, but not impossible.
Find out your triggers.
ws
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- Re: To the celiac not doing better o... emma6
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