Hi everyone,
I'm new here and don't really know how to use this site. So I hope it's gonna work :-)
So I'm 23 years old girl from Switzerland. I'm an cerebral plasy child and I've got some blood coagulation condition. When I was 16 I've got an ovary cancer who had leave me with only one ovary. (now I'm in remission :-))
One year and a half ago my doctor concerned about my ovary, my heavy menstruation and some blader infection, convinced me to try the Mirena DIU.
First i bleed and bleed and bleed and finally it's stopped. After that I've got my period for three weeks any months and only slow bleeding. Then it changes again and I only got my period for 4-6 days with only used blood.
And then, 6 months ago everything started to fall apart. I stared to feel unwell and tired all the time and weak and had some very big panick attack (and always feel insecure. Like if I was going to have something terrible that will happen to me or like if the world was against me) I started to lose weight, hair and got a lot of sweat. Had migraine, bad sleep and more back pain than ever, joints pain. Hot and cold flush...
(I always sweated a lot but not that much / I have panick attacks since a major
Depression two years after my cancer, but they were controllable. Because of my CP I've got a lot of back pain but Physo and Chyropractor can help but not those times...)
In the beginning I thought it was because I was under a lot of stress and my mom told me to stop focusing on myself and my body and it will get better.
But it didn't... I starting to get angry and desperate and I knew deep down that it could be this sh*** mirena. I decided to go to my gynaecologist. He told me it wasn't so big deal and it will pass. But it didn't
I run to my general doctor who is also an antroposophic doctor (Wikipedia had a English page for antroposophic medicine / can't put the link in my post so sorry)
and told her all about my symptoms.
She came with an unpleasant diagnostic : menopause
And I was more angry. After that appointment we waited a month and a half before I decided it had to stop.
(During this time more symptoms have came)
And today, it's been three days since I've got my Mirena removed. When I told my gynaecologist why I wanted it out and told him all the symptoms he was in total denial. But I knew it was because of that thing. I had done research especially in English because I noticed how much people in USA and UK are informed and aware of what is really a Mirena DIU.
So my gynaecologist removed it three days ago and send me home.
I don't now what to except now. I heard about the mirena crash and about the possible silicone poisoning.
I'm only 23 years old and I've been through enough shit for like two life at least.
Mirena crash is scaring me and the silicone thing is scaring me even more!! (Like hell) I'm not even sure we got the silicone test here in Switzerland. We got no info about Mirena or about what it really is...
Even if my general doctor is great and even if I've got a great family...
I feel scared and lost and I don't know what to do, what to ask for, what to except now that this piece of hell is out Please can anyone help me ?? Please!
Sharing your story or tell me what to do or to ask to the doctor would be so kind. I'm so confuse and scared.
THANKS A LOT FOR HAVING READING THIS ENTIRE POST !!!
(And sorry if my English is bad French is my mothertongue and English is only the second language I learned in school)