My EC started as a side effect from taking accutane. Was out of control for many years until recently.

My EC started as constantly chapped lips in high school. I don't know why or how but my lips were always dry every day for the entire 4 yrs I was in high school. It didn't turn into full EC until my 2nd year in college when I was using aquaphor regularly and suddenly it started turning my lips white and my lips would always turn white when wet and kept peeling in layers. 3 years later and no improvement.

I used all kinds of chapsticks, oils, and lip creams with no success. I used the strongest steroid Clobetasol on my lips for 2 months including other steroids like protopic and that nystatin one with no change. Tested negative for food allergies . Tried no sugar, no gluten, no meat for months with no change. I also had a lip biopsy with no useful results.

I think I narrowed it down to intestinal problems for me because of constant loose stool and it seems like an internal problem but I don't know how to treat it. Probiotics and diets didn't help. So far I had EC for about 4 years.

Definitely not crappy. Just about every aspect of the condition and every purported cure have been discussed on here.

I have been visiting this forum for approximately 15 years, however, and I am still under the impression that there is no KNOWN cure.

My view of EC is that, once you have it, it typically doesn't get a whole lot better. However, there are certain things you can do to aggravate it.

Right now, I have resigned myself to having it forever and focus on managing it. However, I keep coming on here because I don't want people to lose all hope.

We will keep on having to take calculated risks if we're ever to find a cure.