Could Mirena IUD cause M.S. multiple... 
kimberenee82
10 y
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I had my first IUD placed back in October. I have been spotting or bleeding since but thought that was somewhat normal. then recently in the past month I feel my life has been turned upside down. I started having strange numbing tingling in my left foot and toes. then it moved to my left arm, hands and fingers. I also had a lot of joint pain (more than normal- have had joint pain for several years) I had a sore neck, and I felt like i had knots all over my back. so I went to the doctor and to a chiropractor. the chiropractor thought I should see a neurologist - thought I might have something neurologically wrong autoimmune or m.s. the doctor thought I had Arthritis and possibly a rotator cuff tear. I had blood work and xrays done and all came back fine. no arthritis, no tears, nothing. then my symptoms started getting worse. hard to walk, dizzy, blurry vision, pain in eyes, pain in muscles, twitching, tremors, then I was at work and realized all of a sudden that my legs were so weak i could barely walk. my husband started searching the internet and found something about possible silicone poisoning from mirena IUDs that mimic M.S. (multiple sclerosis symptoms). as of right now I have 17 symptoms of M.s. I am going to get my IUD taken out ASAP but does
anyone know if an IUD can actually CAUSE m.s. it sounds like some people are still having symptoms long after removal. I am scared and just want to be prepared.Advertisement
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- Re: Could Mirena IUD cause M.S. mult... nile
10 y
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This is a reply to # 2,150,751I know a lot of us have been tested for MS (myself included) because of the similarities, and at least one had brain lesions, but I can't remember anyone on this board who actually got diagnosed with MS. All the symptoms you describe are Mirena symptoms - you need to get it removed ASAP! And recovery may take a while. You definitely want to get tested for MS however, to hopefully rule it out. Many have had low Vitamin D levels and Thyroid, and many get their hormone levels tested as well.
Good luck, and hope you'll post back with your progress!
-nile
- Re: Could Mirena IUD cause M.S. mult... Gina777
10 y
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This is a reply to # 2,151,107I had the mirena in for 5 weeks and i had alot of symptoms and still trying to recover.
- Re: Could Mirena IUD cause M.S. mult... Gina777
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- Re: Could Mirena IUD cause M.S. mult... disneygal
10 y
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This is a reply to # 2,150,751I can't answer about whether it causes MS, but I can certainly say it does seem to cause symptoms that mimic it. Tongue tingling was one of my symptoms that drove me to the doctor. My PCP immediately sent me for a brain scan, but fortunately there were no lesions and a follow-up visit with specialists determined that my symptoms were not clustering enough to suggest MS.
It is terribly scary, though. I hope you can have the Mirena removed ASAP. I have had lingering side effects, but nowhere near what I encountered toward the end when I had it in. Good luck
- Re: Could Mirena IUD cause M.S. mult... SLucy
10 y
13,245
This is a reply to # 2,152,050Advertisement
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I haven't looked into this but I just had a fairly major episode of psychosis which I fully attribute to the Mirena IUD; while MS is generally considered a 'medical' issue there is some debate as to whether it is better classified as a mental health disorder and the diagnosis between bi-polar disorder and MS is often confused (with individuals being initially diagnosed with bi-polar and later reassessed as having MS). I was diagnosed as bi-polar II, 3 years ago so I should not have been so stupid as to realize the IUD was a terrible idea for me but i didn't think it through.
Anyway i got it out 2-days ago, got my period today and feel completely back to normal. I should note that I am never anxiety and stress free (I wonder if anyone is?) so I still have anxiety associated with the follow up psychiatrist assessment and the 3rd diagnosis this hosiptal might give me (first one was 'mild depression') and whatever new drugs they will tell me I need to be on for life in order to be considered a reasonable member to allow into society. Maybe we should just admit Women's liberation was a joke? The hormones and mood swings that are part of being a Women have been deemed unnacceptable, it might be easier to accept this if we weren't all pretending at the same time that Women should be considered equal.- Re: Could Mirena IUD cause M.S. mult... bobbidyl
10 y
12,468
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This is a reply to # 2,160,858There is no debate on whether ms is a mental health disorder. It is an actual medical condition. There are lesions on your brain and Obands in your spinal fluid. Nerve studies to show that nerves are damaged. Secondary problems such as trigeminal neuralgia which is the most painful condition known to man. Anyways I came here to see if there is a correlation with ms and the mirena coil. Sorry to be so defensive it's just very annoying it ruins peoples lives to be said it's not a medical condition. There are hundreds of people in wheelchairs who may disagree with you on that one. - Re: Could Mirena IUD cause M.S. mult... NinaKatz
8 y
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This is a reply to # 2,160,858Advertisement
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Most of your post doesn't make a whole lot of sense, but I will correct one point that you are terribly wrong about. M.S. Is an autoimmune disorder. It is a disease in which the autoimmune disorder attacks the myelin sheaths of the axons of the central nervous system. It is most certainly NOT a mental health disorder and is in no way related to bipolar disorder. There is no current debate, nor has there ever been, in labeling M.S. as a mental health disorder.
There is no confusion is misdiagnosising M.S. As bipolar disorder. The two illnesses could not be more different. M.S. Is diagnosed by the presence of lesions in the brain and spinal cord, inflammation in the brain or spinal cord and at least two episodes of symptoms. The list of symptoms do not even remotely resemble bipolar disorder. Numbness, partial paralysis, blindness are just a few of the symptoms of M.S.
Do a little reading before you spread misinformation.
- Re: Could Mirena IUD cause M.S. mult... bobbidyl
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This is a reply to # 2,150,751Kimberenee82 did you get yours removed? How are you doing? Did you ever get tested for MS?
- Re: Could Mirena IUD cause M.S. mult... stmess
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This is a reply to # 2,150,751Only Stem Cell Therapy for MS can get you back healthy ... Stem Cell Therapy is available now
- Re: Could Mirena IUD cause M.S. mult... Kamsdance
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This is a reply to # 2,150,751I am having almost identical symptoms to yours. Had Mirena removed 3 weeks ago. I already feel a little better. I've had all kinds of tests and everything came back clear or inconclusive for MS or anything more than Arthritis and a little neuropathy in one foot/leg. I have memory problems, numbness, tingling, severe fatigue, weakness in my arms and legs, speech problems and the list goes on, but no explanation. I quit taking all medications, changed my diet and quit drinking alcohol and nothing helped. The Mirena was the last thing I could think of to stop using. Did you ever get any answers for your symptoms?
- Re: Could Mirena IUD cause M.S. mult... #231745
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This is a reply to # 2,150,751Advertisement
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woah so ive had my iud in for 2 years.. I was recently diagnosed by 2 neurologists as being ataxic. so this is extremely scary i am however getting my skyla removed asap.. so crazy has anyone been able to find Science articles that can prove this is related to my iud? thanks!
- Re: Could Mirena IUD cause M.S. mult... nile
10 y
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