Guys, my lips went back to shit after I stopped using the Bepanthen cream. After like about 3 weeks, the build-up came back, turns white in the shower, etc. I guess I will have to go back to using the Bepanthen cream in hopes of trying to control this shit again.

I am REALLY struggling with keeping sane at this point with this EC shit. I feel like just giving up & just doing what I used to do before--just peeling off any dead skin to try to attempt to live a normal life.

I really don't know how much longer I can really deal with this shit. I really wouldn't be this upset if I had some decent leads with doctors and treatment but, doctors are just useless with this shit. I can't get straight answers from them & none of them really want to try to go an extra inch (forget mile) to try to help me. I mean, if I was a doctor I'd run multiple tests on biopsy samples, do a sonogram of the lip tissues to try to detect abnormalities, but most importantly--I'd LISTEN to what the patient (me) would say about the things they have uncovered in their own research/trials. Furthermore, if a patient brought me a published article from a medical journal describing similar symptoms to what the patient has, and shows an almost 100% success rate with a particular treatment (hyaluronidase injections followed by an ointment of 1% hydrocortisone 1% neomycin), then I'd definitely try that first to rule it out before prescribing medications that would shrink the liver, cause jaundice, baldness, etc.

Sorry for my ranting but, I'm just REALLY at a bad point in all this. I can't believe I'm going to be suffering with this EC shit for already 20 years in about 8 months time. For me to say that I am sad is the biggest understatement ever. For me to put how I currently feel quite frankly? My soul aches!