MAJOR breakthrough - Thyroid support... 
Sherpa
11 y
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Background: Was feeling "good" in June, recovering well and was very active. Pushed too hard (planned a backpacking trip to Montana!) and had a crash. Spent the whole summer in low gear - with symptoms of heat intolerance, fatigue, tingling, and depression.
After reading Dr. Richard Shames' book "Thyroid Mind Power" - http://www.amazon.com/Thyroid-Mind-Power-Hormone-Related-Depression/dp/160529...
- I began to have a much greater understand of how the thyroid affects one's overall sense of energy, vitality and wellbeing. I got my thyroid tested at the local doctor and the results were "perfect". But in Dr. Shames' book he explains how some thyroid dysfunctions cannot be measured accurately by lab tests, and that symptoms (which I had MOST of) and family history (lots of thyroid and adrenal issues) can be more indicative than lab tests.
The basic OTC supplemental support formula Dr. Shames originally suggested to me for boosting thyroid function was:
6000 I.U of Vitamin D3
100mg of Rosemary extract (or cook with Rosemary)
400ug of selenium
I took this PLUS some kelp (200ug of iodine) and some Ashwaganda extract and my mood, energy, stamina, outlook soared higher than it had been in ages.
There is a supplement Xymogen T3 Medcaps that isn't cheap but it conveniently combines all these nutrients into one capsule. I have instead taken this for about 2 weeks and it works great for my particular thyroid condition.
I did a phone consultation with Dr. Shames (overall recommended) and he said my lab tested indicated that my thyroid dysfunctional was mild "more nutritional" than suggestive of a serious thyroid disease - but it could be "off" enough to cause a major impact on my well being. He saw that I was having a slight but not huge problem converting T4 to T3 - within the normal ranges but could be a little higher. He suggested trying over the counter, thyroxine-free thyroid glandular.
He recommend Xymogen T-150 caps... which is OTC thyroid glandular that has has the T3 type compounds removed... and it also has adrenal glandular, spleen, pituatary tissues, etc. He said that is good because if you are stimulating one gland, it is often a good idea to ramp up the others to keep them all in sync.
The T-150 was little expensive and I haven't had the best experience with adrenal glandular (too stimulating) \... so I ordered - Swanson Premium Thyroid Glandular (Thyroxin-Free) http://www.swansonvitamins.com/swanson-premium-thyroid-glandular-thyroxin-fre...
- made from New Zealand cows. The reviews were good and the price ($5 a month) can't be beat.
I started with a 1/4 capsule and worked my way up, had no problems.
I now take 4 Xymogen T3 Medcaps - and 1 Swanson Thyroid Glandular in the AM and the difference is amazing!
I feel 500% better than I did just 4 weeks ago... and actually better than I ever felt before developing AFS. I feel like myself as I was 15 years younger. I feel alive, confident enough to make plans and go on dates, I can attend intense power yoga classes in heated rooms, and my Depression and anxiety have markedly decreased. I can also sleep better and handle changes in temperature... and tolerate heat... much better.
So the moral of this story is that in additional to adrenal supplements, you may need THYROID SUPPORT - even if your lab tests are normal. Especially if your adrenals have been through the mill.Advertisement
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- Re: MAJOR breakthrough - Thyroid sup... sam7777
11 y
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MoreThis is a reply to # 2,101,189I definitely vouch for this given the amount of time I spent studying endocrinology, and the effects of ashwaganda. Aswhaghanda should raise your testosterone also, so its a combination of androgenic hormonal effects, the HPA-axis, and thyroid function. I know that this is pretty intensely complex relationships, when something starts to get low or out of balance the effects are disproportionately severe.
I really wish I knew more about glandulars. People consistently say good things about them, but I haven't gotten results from them. But it is definitely food for thought. - Re: MAJOR breakthrough - Thyroid sup... healthyartist
11 y
10,093
This is a reply to # 2,101,189Okay great! But PLEASE be careful. It really is true that folks need to have their adrenals supported well before starting thyroid support.
See number 3:
http://www.stopthethyroidmadness.com/mistakes-patients-make/
It is imperative to support endocrine organs in the right order... Remember that saying "beer before liquor, never been sicker"?--- Thyroid before adrenals, much sicker quicker. If you start on thyroid support and feel any of your adrenal symptoms worsen, stop immediately.
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- Re: MAJOR breakthrough - Thyroid sup... Sherpa
11 y
9,956
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This is a reply to # 2,101,205HealthyArtist,
My adrenals have been well supported and I don't "think" it's gonna be an issue - but GREAT ADVICE for other sufferers.- Re: MAJOR breakthrough - Thyroid sup... healthyartist
11 y
9,948
This is a reply to # 2,101,235Yes, good! That message was for other sufferers and those that have questioned the logic of "adrenals first" on this forum in the past.
- Re: MAJOR breakthrough - Thyroid sup... feo66
11 y
9,928
This is a reply to # 2,101,250I agree. Great to hear that it is working for you Sherpa.
But like Healthyartist, I too had a bad experience with Thyroid support.
If one get's anxiety or insmonia from supporting the thyroid... probably not a good sign.
And I agree about the tests. They seem to be useless. I had lots of symptoms (missing outside of eyebrows, no achilles reflex, dry skins ,cracked heels).... but my labs looked perfect.
I never got tested for reverse T3. Apparently if your body can not handle thyroid energy, it produces reverse T3, which is useless.
Really great that it is working for you !
But be careful folks ! Supporting the thyroid before your adrenals are ready will make them worse.
Dr Rind saved my bacon on that one before I did too much damage.
Don`t want to rain on your positive post, just want to make sure people know to tread lightly into thyroid support.
- Re: MAJOR breakthrough - Thyroid sup... Sherpa
11 y
9,912
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This is a reply to # 2,101,348Feo,
Thanks for the caution. Actually when I typed this this a.m. morning I felt so amazing... it was the first day I worked up to a full capsule of thyroid glandular. I felt AMAZING in the morning - like my 21 year old self - but come evening (now) slightly tense / wired. Not like...'ahhh! My adrenals are crashing'...just like i had a lil too much coffee. At 1/2 cap of thyroid I felt good... and not the least bit wired... just chill and good and capable. I'm definitely gonna go back down to 1/2 cap tomorrow and go slow.
Thank you & healthyartist for your cautionary note. I have felt so crappy for so long it is hard to be patient and not run to whatever seems to make me feel better... and take as much of it as possible.
In my own internal / intuitive assessment... I think my adrenals are in decent shape and functiom...working properly...resting properly...not longer require much supplements... most other systems in body seem functional and balanced...i can digest, exercise, sleep, dont crave salt, not anxious, no pain...but I suspect the thyroid function has been imbalanced for a decade or more...and severely worsened or thrown out of whack by the 'crashes'. Thyroid nutrients seem to be the 'missing key' that takes my life from quasi-functional to functional. I am really praying it's as simple as that - please God let me live life and love again. Bless me with the energy to care for others, smile, be a blessing in people's lives and not a drain... I have learned many lessons and been greatly humbled while suffering, trying to survive. I know it is possible, and i trust you. With thanks and praise!Advertisement
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- Re: MAJOR breakthrough - Thyroid sup... Sherpa
11 y
9,829
This is a reply to # 2,101,389This AM I went back down to 1/3 capsule of Swansons glandular and I feel calm, capable, not depressed, and not wired / stimulated.
Note to self& others: "Start low and go slow" - don't jump the gun. - Re: MAJOR breakthrough - Thyroid sup... healthyartist
11 y
9,870
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- Re: MAJOR breakthrough - Thyroid sup... AdrenalSuccess
11 y
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This is a reply to # 2,101,389We'll all follow you closely there Sherpa, while wishing you the best.
A year ago I tried some glandulars, and as FEO says if you don't feel anxious, irritated, nor have sleep issues then I think you're good. As you are saying, as long as the adrenals are in solid shape, then you may need to "wake up" the thyroid and stop producing the reverse t3.
But only if your system is ready for it.
(Kinda cool we all agree on this one; rarely do we all have convergent experience/advice!)
- Re: MAJOR breakthrough - Thyroid sup... Sherpa
11 y
9,829
- Re: MAJOR breakthrough - Thyroid sup... Sherpa
11 y
9,912
- Re: MAJOR breakthrough - Thyroid sup... AdrenalSuccess
11 y
9,791
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- Re: MAJOR breakthrough - Thyroid sup... feo66
11 y
9,928
- Re: MAJOR breakthrough - Thyroid sup... healthyartist
11 y
9,948
- Re: MAJOR breakthrough - Thyroid sup... Sherpa
11 y
9,956
- Re: MAJOR breakthrough - Thyroid sup... nyckid10
11 y
10,026
This is a reply to # 2,101,189What about going on pharmaceutical thyroid hormonal support...like 1/4 grain nature-throid. Or would you recommend the supplements instead? I do feel like I'm missing something.
- Re: MAJOR breakthrough - Thyroid sup... Sherpa
11 y
9,850
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This is a reply to # 2,101,272NYCKid,
Dr. Shames recommends first starting with homeopathic (in some cases) as the gentlest.. for very mild problems. Then the next step is to add over-the-counter vitamins and supplements to help the thyroid work better. The next level is to try over the counter thyroid glandular which has had the T3 & T4 removed but still contains other stimulating hormones. He says if all those aren't satisfactory, then the strongest level of support is: natural desiccated thyroid (Armour) or prescription synthryroid type drugs.
(Most MDs start right on the strongest level!)
You should definitely consider getting the "Thyroid Mind Power" book by Dr. Shames for more detailed treatment details and doses. His book is not aimed at hardcore AFS sufferers, it has some "infomerical" type plugs for supplements, coaching services and acupuncture... (kind of like Dr. Lam does... and also like Lam, his supplements and advice are legit, if not cheap).
His book & phone coaching gave me some invaluable / life-changing insights... and he is a sharp, knowledgable, caring doctor (M.D. with nutritional + supplement expertise) to work with. His real clinical expertise is with thyroid issues.- Re: MAJOR breakthrough - Thyroid sup... healthyartist
11 y
10,013
- Re: MAJOR breakthrough - Thyroid sup... healthyartist
11 y
10,013
- Re: MAJOR breakthrough - Thyroid sup... Sherpa
11 y
9,850
- Re: MAJOR breakthrough - Thyroid sup... SB1108
11 y
9,959
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This is a reply to # 2,101,189Advertisement
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Wormwood, Clove, Clarkia, Turmeric, Epsom Salt, Uva Ursi, Goldenrod
Sherpa - I'm so glad you are doing better and you have found something that is working for you!!!
I was diagnosed with hypothyroidism 15 years before I was diagnosed with CFS/AF. I've been wondering recently if my consumption of thyroid replacement medication all these years (yet no adrenal support) is a cause for my illness.
I just started to take adrenal glandulars but they don't have anything other than bovine adrenal concentrate. I wonder if its necessary to add in the "spleen, pituatary tissues, etc." so that those get assistance too? Or do you think you could do just the adrenal support?
Do you take any additional supplements? Anything for sleep?
- Re: MAJOR breakthrough - Thyroid sup... Sherpa
11 y
9,877
This is a reply to # 2,101,299SB1108,
In the 22 months I have been actively healing my AFS, I only tried adrenal glandular a couple of times. I found it too stimulating at normal doses. I had success taking a "tiny" portion of a capsule (perhaps 50mg)... but had better success with pregnenolone, DHEA and extra vitamin C when I needed heavy duty adrenal support (post crash states, etc). I don't know if the extra tissues are necessary, but a number of supplement formulators include them... so I am guessing there is some wisdom to the practice of combining.
In this later stage of recovery... I have gradually weaned off of the high doses of Vitamin C (as high as 8.5g per day) and B5 compounds (as high as 2400 mg per day) that I relied on when I needed heavy adrenal support.
I currently take:
1500mg Vitamin C
450mg pantethine
50mg of B6
4000 i.u. Vitamin D3
4 Xymogen T3 Medcaps
70 - 100 mg of thyroxine-free thyroid glandular (bovine)
6mg astaxanthin - for photosensitivity
5,000 to 7,000mg of inositol, per day... for OCD, depression
2 fish oil caps
400mg magnesium - at bedtime
30mg zinc - at bedtime
Most nights I do not need anything for sleep... but if I somehow get fired up and toss and turn... 2 - 4 caps of valerian root + some Seriphos and/ or 1mg of melatonin helps,... plus meditative breathing for as long as it takes to go into the zone.
If I am terribly crashed, having "fibro" pain and muscle issues - really suffering - the best sleep medication I have found is the muscle relaxant Soma (carisoprodol). Effective, side effect / hangover free, and probably very habit forming if used on consecutive nights. I would not advise taking it more than a 2 - 3x a month.
- Re: MAJOR breakthrough - Thyroid sup... Sherpa
11 y
9,877
- Re: MAJOR breakthrough - Thyroid sup... purplepixie
11 y
10,032
This is a reply to # 2,101,189Advertisement
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That's fab new Sherpa that boosting thyroid support is making you feel so much better...i'm really chuffed for you - so good to hear positive healing news! :-)
It's a hard thing to judge, if the adrenals have down-regulated due to initial thyroid problems, or if the thyroid has down-regulated due to adrenal sluggishness.
One only knows when starting to support the glands, and like HA states...it's important to start with the adrenals.
You're proof, amongst many other folks, that although boosting adrenal strength has helped you hugely, you've still got a thyroid issue...and need to address that to feel more 'optimum' as you testify.
If it's just an adrenal issue, once the glands become strong and productive again, the thyroid/hypothalamus will 'step up' their production to match the stronger adrenals.
So i wonder if initially you had a thyroid issue, which then caused adrenal sluggishness, creating symptoms that are hard to ignore....so you focus on adrenal health...get improved health, your thyroid is then playing 'catch-up', and currently needs some support to fully match your healthier adrenals?
I've just received 'Stop the Thyroid Madness' book which is packed full of info on patient experiences of thyroid and adrenal issues, and treating them. Would highly recommend it to folks on this forum.
Keep us posted on progress :-)
- Re: MAJOR breakthrough - Thyroid sup... lotsofquestions
11 y
9,684
This is a reply to # 2,101,189Great to hear! I enjoy your posts, and will check out the book.
All these systems and their interactions are really complex, hopefully one day they will be better understood. - Re: MAJOR breakthrough - Thyroid sup... Sherpa
11 y
9,860
This is a reply to # 2,101,189Followup - after lowering the dosage of the raw thyroid glandular, this seems to be working GREAT for me. On Thursday I had an EXTREMELY stressful day... a combination of full-on stressors (ex: unexpected, unjust bill for $600 and a 45 minute phone call disputing it - no dice) that would have surely caused a crash in prior months, and I found myself tense, full of adrenaline and shallow in breath for a while... and had a hard time falling asleep later that night... but that was IT. The next day I felt FINE - like a normal person, who can have a 'bad day' without paying the "crash" price the next day, or days / weeks later.
The only issue I am having with this thyroid support is that I now seem to awaken at 5 to 5:30 AM every morning, like clockwork... feeling refreshed and ready to go. Does anyone have any insight into why this is happening or how to 'fix' it to awaken at 6:30 like I used to?- Re: MAJOR breakthrough - Thyroid sup... purplepixie
11 y
9,760
This is a reply to # 2,102,050I'm so jelous..refreshed and ready to go at 5.30am!?! WOW! :-)
Maybe it'll settle down in time with this protocol and you'll find you wake up a bit later. - Re: MAJOR breakthrough - Thyroid sup... AdrenalSuccess
11 y
9,761
This is a reply to # 2,102,050That was a sign I had when I tried the glandulars. Are your ears ringing when you wake up (a bit) or what other signs? I'd recommend paying attention to that for a few days and noting it.
- Re: MAJOR breakthrough - Thyroid sup... purplepixie
11 y
9,760
- Re: MAJOR breakthrough - Thyroid sup... sam7777
11 y
10,071
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