I have been doing just that. Keeping a log of everything. I am a person motivated by justice for those going through this, only - myself included. At this point, I'm on hold with a dismissal at the ER, no exam, no nothing.
You're exactly right - with leading questions, writing everything down, and the iron will to suppress your panic and knowledge so as not to appear threatening to them in any way. Hard to do. Oh so hard to do. Your head is screaming why isn't anyone listening to me and why don't they want to help. It's very primal.
Will continue in this vein. The hardest for me is to refrain from anger.
No call still from clinic at Travelers. Only thing standing is primary appt. with only place could get in, Providence Medical Group on Oct. 11th. Left info on Mansonella perstans for doc to look over, mentioned either referral to another doc a possibility for our first visit, and mentioned CDC protocol for diagnostics as well.
Have notified the other "agency" to briefly explain what has happened so far, and for help or monitoring the case as we progress, keeping details, exactly as you have mentioned. My son will be going with me as a witness...He has seen the cysts and nodules forming at my knee joints and elbows...For the last decade, I have had symptoms and took both stool tests due to the change in stool, was diagnosed with "folliculitis" back in early nineties, had a colonoscopy in DC in 2010, small polyp taken, and almost submitted to exploratory stomach exam under anaesthesia this past summer. Also another stool test and exam of my swollen stomach.
Was bitten again by something while staying at hostel here in Olympia past summer, and was taken to same ER that dismissed me, and almost having to be given drip anti-biotics...Wound was packed with tape, it was on my right groin, and you probably might be familiar with the rest. It explains so much for me. I am a crossword doer: love the NY times Sunday insert, spend whole day in ecstasy; I have a mind that's good for detection, and putting two and two together. I like solving. For the sake of solving and helping.
I feel like I've found the key to storage room that is holding what people need to get better, and I'm waving it around, expecting, well done, and no one wants the key.
So really I do have quite some medical records of symptoms being diagnosed as something else, up until recently, as a matter of fact.
Now, because symptoms so severe, I'm in more panic mode because I see the disintegration, and no one is helping fast enough. It's the diagnosis that's hard, and for anyone in the legal arena, that's what is needed first. Failure to diagnose at all? Well, I don't know what category that falls under, if you are denied any access to diagnostics at all...