Hv and anyone else having an opinion or suggestion: I was speaking with an aquaintance today and found out that her young daughter ( age 29) is having some real problems and doctors cannot find out what it is. Here is what is it NOT: MS, lymes disease, muscles test good. Here are her symptoms: pain ( sometimes severe) from her waist down. It is not localized, and she cannot walk much due to the pain. She needs a wheelchair to be anywhere other than home, and many times must crawl up the stairs pulling herself by her arms. She has had MRI's, CAT scans.... the whole nine yards, but not one doctor has been able to make any type of diagnosis. Anyone have any ideas on what thhis might be and what may be causing it... how to help? Thanks to all who answer!!
I can think of several possibilities but that really is limited information. There are a number of different forms of neuropathy. It can also be from a tumor or nerve compression.
Was this a gradual or sudden onset? Did she have any injuries or procedures shortly before the onset? Can she describe the pain better such as sharp, pulsating, chronic, deep, superficial, crushing, etc? Anything seem to make it feel worse or relieve the pain?
I am sorry, Hv... I do not have that info to assist you. I was asking this mom if her daughter was any better. When I last saw the young woman, she was in a wheel chair, and when I inquired yesterday, mom was pretty frustrated by the fact that the doctors cannot find what is causing the pain in her muscles. Of all the tests she has been given, all of them have not turned up anything. Mom states that they have givine her many tests, but I do not know what those are, except for what I mentioned. Thanks for answering... if you want to list any possibilities to check out, that would be appreciated.
I listed some possibilities in my last post. But without more details it is hard to say where to go next.
People really need to be more specific about their symptoms when asking for health advice. If someone asks what to do for pain that tells me nothing. Different sources of pain require different methods of treatment. Different types of headaches are treated differently. Neuropathies are not treated the same as pain from a urinary tract infection. A nail will have to be removed from the foot before you can address that pain........
Therefore, if you can get more information it would be a great help.
Being that the scans showed nothing though then I would say the most likely scenario is some form of demyelination neuropathy. They would have checked her for diabetes so this would leave some form of infectious neuropathy unless she had some procedure such as injecting something in to the cerebrospinal fluid (CSF). This happened to my aunt. The doctor injected a drug in to her CSF even though the drug warning specifically stated this is not recommended. Even injecting water in to the CSF can cause demyelination.
If she would like to contact me by e-mail with more details such as her lab tests I may be able to give more details and suggestions. But again, the information presented already is not very much to go on. It could really help to see the results of her blood tests. Particularly for the red and white blood cells and if they did SED rate, CRP and ANA.
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If you have some specific information from the book that you think will help then you are welcome to post it.