Welcome to the club!

I'm a little over 2 months removed from finishing the medication and I feel better and better each day.

I can eat whatever the hell I want w/ out feeling the urge to go to the bathroom, I'm not fatigued, I can think clearly, I can work out at the gym. Fantastic to have my life back!

Unlike the others, I needed validation that I fully eradicated the bug, so I visited Dr. Cahill again 6 weeks after finishing the medication. Indeed, the bug was gone.

In terms of the medication, I did not take the exact meds Dr. Cahill prescribed. As he probably told you, the prescription he gives kills the bug 80-85% of the time. If you still have the bug thereafter, he gives you a stronger dosage.

I didn't want to take the chance so consulted with doctors in my family and Shrimpy to take a stronger dosage. This dosage is recommended by numerous publications that I'm sure Tropical Boy can send you links for, if you'd like.

I took Tinidazole 2.5g once a day for 5 days. (Tissue Drug)

Followed that with 1000mg of Paromomycin 3 times a day for 10 days with Doxycycline 50mg once a day for 10 days. (Lumen Drug)

Just to be safe, I also took a 5 day combo for cryptic Giardia consisting of Quinacrine and Albendazole.

I didn't have much reaction to the Tinidazole, with the exception of upper should pain. This is most likely because I've taken it many, many times before.

The real reaction came to the Paramomycin and it came in 2 cycles. The first was within the first 1-2 days of the meds. I literally had to go to the bathroom over 25 times. I assume the body was detoxing from killing the bugs. The second cycle (which I'm assuming was the bugs trying to repopulate) was about 5-6 days in. I got the worst heart burn I've ever had in my life.

The most notable difference after finishing the meds was the chronic right shoulder pain I had. It was gone. Completely gone after being there for the past 3 years. I too have read a lot of publications on this topic and it's most likely that this was caused from the amoeba invading the liver.

Also, this all started with my sinuses. I even had sinus surgery and within days, all my sinus issues came back due to EH. Literally, within 2-3 days my sinuses were completely clear. I can't even remember the last time I was able to breathe out of both nostrils but 2 months later, I can still breathe and have not had any shoulder pain.

These two things were the first to clear up but even 2-3 weeks after, I still felt pretty terrible. You can even ask Shrimpy.

I spoke to Richard Behar, the journalist Shrimpy references, and he said it really took him 4-6 weeks to start feeling better.

And truth be told, he was right on. 8 weeks later, I feel like myself again.

EH was an absolute bitch and even when I blatantly told the doctors at the Cleveland Clinic, supposedly one of the best hospitals in the world, they told me all the meds I had previously taken would have killed EH.

There are a lot of people on these forums that tell you what they believe can fix you. Trust me, I spent countless hours trying to follow people's advice to get better during the 3.5 years I had EH. Nothing worked. Everyone who comes on here and tells you stool samples, herbal supplements, certain drugs can fix you, my experience (and others) are a testament that unfortunately, their advice is incorrect.

If you have any additional questions, I would be happy to answer them.

Cheers,
Brian

BTW, I also have a blasto diagnosis and many low-grade gi/muscle/fatigue symptoms. Diet modifications help, but do not cure."

blastocystis is a bogus diagnosis, and you can bet on that. I am a living example of that.

My life is wonderful, after less than 4 months! Amazing that I never thought I would feel this way again; I thought I was going to be disable.

However, know that I did not feel good immedietley after the meds, and they will upset your stomach for some months; it is very important for you to not doubt that you are CURED after the meds.

You have to ask why Cahill did not prescribe you Tinidazole.

Did you read my story about RIchard Behar and how people have to be really patient as they recover; why this patience will be crucial as you will not do so many wrong things thinking you are not cured.

//www.curezone.org/forums/fm.asp?i=1932863#i


I am really glad you went to Cahill.

So we have another case of a person who was midganosed by stool tests. You will gain your life back man....

>I just went to Cahill yesterday and got the same diagnosis - Eh.

>Also, are you guys still feeling well? I know many who feel good for a short time then go back to their old chronic symptoms.

I will not include too many details because my story is long. I will try to answer questions if you have them...

I traveled to Brazil in 2010 for testing and treatment. I did a combination of sechnidazole, kitnos and diloxinide for 10 days against EH and after around two months I took Giarlam against Giardia. I started feeling awesome two weeks after Giarlam and felt real great for close to two months and then a lot of the symptoms came back.

In 2012 I tested again with Cahil and the result was EH. He also prescribed Doxycycline and Paromomycin.

This is what I did.

First 5 days I took 2500mg of tinidazol once a day.
On day 6 I started taking 3 days of 2500mg Humatin capsules.
On day 9 I started 7 days of 3000mg of liquid Humatin.
On day 16 I started 2 days of tinidazol again.

It was a total of 17 consecutive days.

Paromomycin was divided in to 3 times per day.

I took a little less paromomycin in the first 3 days (2500 mg instead of 3000mg) because I did not have enough capsules. The initial 3 days of 2500mg paromomycin amount was more then enough for my weight so that lower dose was not a problem.

I could not afford to go to drs to try to get the higher amount of paromomycin. I got part of paromomycin from goldpharma which has a very good reputation.

I also got tinidazole from magicpharma, I have used that pharmacy many times and they have never failed me. The reactions I got from magicpharma's tinidazole were exactly as expected (I have taken Tinidazole from meatspace brick pharmacy before).

I trust magicpharma but I suggest you get the medication from your local Drs and pharmacy if you can.

Its been 6 weeks for me and I can't say for sure I got rid of the bug.

The good.
I have a little less problem with hypoglycemia which is good. I might be absorbing vitamins better. I recently started taking a number of good B vitamins and that has given me more energy. Gastritis seem a bit better. I'm more calm, specially after starting to take B vitamins.

The bad.
My tongue is quite white so its possible I killed the bug but I'm having difficulties recovering the flora and combating yeast.
I often have a problem sleeping more then 5 hours straight.
Symptoms seems to get worse if I eat carbohydrates or sugar. Tinnitus gets worse and tongue gets whiter the next day after carbs or sugar. Still have strong heart beat and drowsiness (but less after starting B vitamins & Iron, very dry eyes, stools look mostly like before but are a tiny bit better some days. My breathing is worse then before taking the meds and seem to get worse the next day when I eat more carbs/sugar.

If I don't get better, its likely I will test again in 2 or 3 months.

Tropicaboy was sucessfull using the tinidazole/paromomycin combination. Britboy and Shrimpy were also successful but they also took quinacrine after the Tinidazole/Paromo combination (they have the details). Artemidore has not reported back on how he is.

Keep us posted

All the best
Jazzy

Update: had trouble getting the meds, but have them now and am halfway through. Will report back in a month or so.

Update #3: 8.5 weeks post-treatment. No signs of improvement. Symptoms remain unchanged. I did have 2 weeks of better stools post-treatment, but no longer.