sorry I have no gotten back with people I am completely overwhelmed right now.

I am having my first sestamibi scan Friday and am scared they will not find anything after reading at parathyroid.com that 85% of the time they miss the tumor as the thyroid gland blocks the picture of it showing on the scan.

I feel without this seeing how my calcium is only 10.0 and 10.1 that despite my lump in the throat, some difficulty swallowing, the history of more radiation for cancer than normal when my problems started that they told me I would bounce off the equipment and could affect the gland in my throat and also radiating my lungs, chest and heart part of it and the tumor sometimes being in the chest as well as my 22 of 26 symptoms noone will believe me if this scan shows nothing.

I finally got a referral to an ear, nose and throat specialist who I thought knew something as I saw he had given a lecture on the minimally invasive surgery was not much help. I was putting all hopes on him as I could not get into a endocrinologist for 5 months and all he did was tell me I needed an endocrinologist.

He told me he did not believe in the minimally invasive surgery and so I said you mean you do the 7-20 inch scar on neck and he said that is old school it is about and it looked like he signed about 2 inches

do they no longer so the big incisions or is that doctors inexperienced who cannot find it and go all over the area.

I also asked what are odds of cutting vocal cords and never speaking again and he said 5% which shocked me as that is pretty high for such an awful effect. I said what is yours (*he is a surgeon snd he said 1%)

does anyone know if this is right and average???


The referral did not go well to endrochronologist and I was very upset given the run around being told I would have to see the nurse practicer at the endro's office again, not given the referral she said I would get and told I will lose my doctor if I see anyone else. The secretary was so rude I had to essentially tell her I need to go and hang up on her.

finally the referring e,n, t doctor initially referring me (back to the endro I already had as they are all in the same hospital) but a month before my appt (I was waiting 3 months already) so I have appt with endro in 6 weeks

Scary though as he only spends like 5 minutes with you and l know nothing about this problem and all I need to say as he saw me for diabetes not parathyroid so I feel I will likely not get to say what I hope to.

I am not sure how to say it all in a short amount of time he will give me so he know how much this is destroying my life and happiness and hear me.

It is all so frustrating. If anyone can answer ro speak to anything I said, I would so appreciate it.

I am praying someone will help me.

Also noone seems to think the lump in the throat sensation that affects me sometimes and the ultra dry throat are possibly connected to parathyroid tumor but it is generally exactly where these glands are located. I think I might be feeling the tumor in my throat as the glands are often between the thyroid and the wall of the throat.

The family doctor said they would find me an endocrinologist that specializes in the parathyroid gland some 6=7 weeks ago and noone knows anything., also waiting for some part of 24 hour urine calcium and noone knows why it is taking that long or even if they ordered the part,

I am so sick of rude incompetent, rushed medical professionals.

Is there anything on the sestamibi scan I should ask bout or they should be sure to do..any help would be appreciated. I go in 2 days Friday