I'm going to live a good life, or I'... 
anatomydoll
13 y
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I refuse to live this life the way that I'm living it right now for the rest of my life. I want to live as normal as a life as possible. I want a good job, take care of my kids, a good wife (I'm in the process of divorce) eventually, serve God, have fun, and just live life to the fullest. If it ain't gonna be this way what's the point, may as well check out and go be with the Lord. I don't know any other way to live life. Living it half way is just pointless I think. I can't do this alone. But I do know that I am willing to take risks with my health in order to get better. The HC has not done what I expected, it has helped, but not how I expected. So I am going to pursue a synthetic (o oh, did I say SYNTHETIC, that could get me in trouble here huh? LOL, don't care man) until something happens. Is it selfish of me because I have kids, maybe. But I'm not there for them right now anyway, so may as well be a risk taker and get something to happen. I'm pursing a steroid called Medrol or maybe even Prednisone. Medrol is better according to my yahoo group because it's easier on the liver and also it has less fluid retention properties. Many people there who have tried HC to no avail have switched to Medrol and feel good within 3 days or so. Then some even switch back to HC when they start feeling better. And then of course they wean off the HC. I save many of these stories in my emails to go back to them to get encouraged. These AF symptoms can scare anyone to death. I understand all of you who are paranoid, I can be that way too, but I try not to and try to just say "If God is with me, who can be against me." Plus, leaving this earth for me personally is not such a bad deal. I'm not out to commit suicide either, but I am out to be the man that I use to be and more. That's right, and more. I encourage everyone to take a stand against this AF monster and continue to research and continue to fight. You are all worth it, every one of you. It's scary, maybe, but just smile and keep going and going.
Much love to you all,
Los
- Re: I'm going to live a good life, o... gavster
13 y
2,618
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This is a reply to # 1,793,399HC, medrol, prednisone they all do the same thing. Medrol is very similar to Hc its just got a longer half life.
If the Hc hasn't worked you got bigger problems than adrenal fatigue.I suggested to you a while ago that you have CFS, I still believe that.Take care.- Re: I'm going to live a good life, o... Insight
13 y
2,543
MoreThis is a reply to # 1,793,413How is Chronic-Fatigue-Syndrome different from AF/Addison's?
I see Chronic-Fatigue-Syndrome associated with "fibermyalgie" many times.
Edit: I saw that the "CFS" letters are linked to more info.- Re: I'm going to live a good life, o... ETmtl
13 y
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This is a reply to # 1,793,423carlos if you want to try some stuff check out cfs info . There alot of drug and protocol that helped people at various point. I was pretty positive the hc would help you since you had very low cortisol but since it did not the issue is maybe not at all with the adrenal only. you should stop it since it is not helping, it was worth trying.
I know cheney use some combination of antiviral drug and immune modulator for his cfs patient. There is also the methylation approach that might be worth trying. Do not give up theres hope.
Go check the forum at phoenix rising (cfs forum)
after doing a bunch of reading I notice that pretty much all the cfs patient were having the same issue as af. But cfs is a bit more recognize and there is more info out there. I do not see any difference with what people on this board are experiencing and what ppl on cfs board are experimenting. I wish I had realize that before because there alot more research and support avaible for cfs.
Anyways man
hang in there you are not alone
take care
- Re: I'm going to live a good life, o... anatomydoll
13 y
2,521
MoreThis is a reply to # 1,793,441Thanks, I wish I could stop it, but simply can't. I've tried weaning off 2 times and my legs would give out on me. I tried weaning off when I was like on 6.25 mg of HC, which is very little. I couldn't, so the nurse at my doctors office told me to increase because this was a sign that I really needed it.
L
- Re: I'm going to live a good life, o... anatomydoll
13 y
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13 y
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This is a reply to # 1,793,423Insight,
The way I believe is that everyone that has adrenal exhaustion has CFS. But not everyone that has Chronic-Fatigue-Syndrome has adrenal fatigue. Chronic-Fatigue-Syndrome has many causes.
- Re: I'm going to live a good life, o... ETmtl
13 y
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- Re: I'm going to live a good life, o... anatomydoll
13 y
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This is a reply to # 1,793,413Sorry gavster. I'm not convinced with CFS. Here's why. From what I've learned through many other sources, Chronic-Fatigue-Syndrome is just something the doctors diagnose when nothing else can be found. THe NTH adrenals yahoo group doesn't even believe in CFS. They say "That's not a real diagnosis." Their problem with Chronic-Fatigue-Syndrome is that they find a correlation with the TSH lab range in the 70s I believe along with Chronic-Fatigue-Syndrome cases increasing. In other words they say that CFS didn't explode until the thyroid madness exploded.
Apart from this I have no sore throat, I have no swollen or tender lymph nodes. I've read and read on CFS and it just doesn't ring a bell. There could be something else wrong, I'm not denying that. Like maybe Lyme disease. I'm testing for that in a special way right now through one of my doctors.
Thank you for your post anyway
L
- Re: I'm going to live a good life, o... Insight
13 y
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- Re: I'm going to live a good life, o... healthyartist
13 y
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This is a reply to # 1,793,399Check out this story:
http://aboutmecfs.org.violet.arvixe.com/Story/MECFSRecovery.aspx
- Re: I'm going to live a good life, o... ETmtl
13 y
2,666
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This is a reply to # 1,793,489wow thats an incredible story
I hope it happens to me too , I at tears in my eye thinking I could be really well again.
Thx for posting we need more of those - Re: I'm going to live a good life, o... Insight
13 y
2,487
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This is a reply to # 1,793,489Man, that story is rough. Great ending though.
I read it earlier to the people in my house. We all agreed that real people who are "psychiatric" are those doctors in the story.
- Re: I'm going to live a good life, o... ETmtl
13 y
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- Re: I'm going to live a good life, o... MrBBQ
13 y
2,783
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This is a reply to # 1,793,399This means a lot to me...
4 years ago, I became a raw vegan and quickly, it massively lowered my thyroid function, probably in synch with my adrenals. 2 years after that, I was eating predominantly muscle meats and fats. Fast forward to the present and now I'm having severe adrenal problems with catabolism of healthy tissues.
I wish I'd carried on with my beers and pasta - at least I would have had my same metabolism. Running around playing football and skipping meals whenever I liked.
Now I'm stuck here with my crappy thyroid function and whacked out adrenals, losing healthy tissues.
I wanna go back and tell that man to keep his toxic liver and standard diet...But instead, I have to seek the forward escape...
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- Re: I'm going to live a good life, o... Iolite
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This is a reply to # 1,793,399Los..
This is just the AF talking. I am sure once you get on the Medrol, and your cortisol levels start climbing up, you'll begin to feel better. Hang in there. Stay in touch with Valerie's AF board on yahoo. Once you get your adrenals stable, look into supporting your thyroid too. It sucks that it is sooo complicated and we can't even get proper support from our doctors -- they just don't get the training to know how to deal with it if it's not cut and dried (ie tumor).- Re: I'm going to live a good life, o... anatomydoll
13 y
2,574
This is a reply to # 1,793,581That's right lolite. I am in a severe hypothyroid state. I believe I have been since I was like 7 years old when my parents got divorced. Stress causes more reverse T3 to occur. My free T3 to reverse T3 ratio is an 8, and according to Valerie this is a very serious level. So I need to get stable temps, which HC has failed to do for me, and once those stable temps are accomplished, say with Medrol for example, then i can raise my T3 med (Cytomel) and the hypothyroid state will diminish. This in turn will relieve stress in the body, and the weaning will probably begin at some point thereafter.
L
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- Re: I'm going to live a good life, o... anatomydoll
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- Re: I'm going to live a good life, o... Trick X Master
13 y
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This is a reply to # 1,793,399Hey Carlos,
I just want to let you know that I think about a lot of people on this board every day, you are definitely one of them. I want to let you know that if the whole hydrocortisone/medrol thing doesn't work out, there are many other routes to take. So please do not give up if hc doesn't work. I have had the lowest of the low moments where a treatment doesn't work, and I spend a week just lying on the ground with bad thoughts thinking I am never going to get out. But that is just my brain chemistry talking, not reality.
Once I started on the simplified methylation protocol I felt a tiny bit of improvement. Slowly but surely, my brain fog has come down a lot and I feel like I have a lot more energy. I don't think it will heal me totally, but it is nice to know I can feel this good again.
And you can too. Just dont put mental blocks up. Have some back up plans please. I will give you one, and its easy, simplified methylation protocol by rich van konyenburg.- Re: I'm going to live a good life, o... anatomydoll
13 y
2,552
This is a reply to # 1,793,713This is probably the best post I got out of all of this. Thanks TrickXMaster. I will never give up, that's for sure. That was the purpose of this post, to let us all know that we ought to never give up. I'm going to live a good life or die trying, that's my new motto.
Thanks again
L
- Re: I'm going to live a good life, o... anatomydoll
13 y
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- Re: I'm going to live a good life, o... gavster
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