OMG you sound just like me

I just heard of this when I found out my pth was elevated and my calcium was 10.1 putting my in the possible category of a parathyroid tumor (2-5% of the guy in Florida's patients).

When I saw the symptoms I about passed out.

Of the 21 symptoms I saw there and elsewhere I had 19. And like you have had them for a long time decades.

I know this is what is wrong everything fits.

Not only that I read it can cause other endocrine problems and I have them like diabetes, and thyroid (multi-nodular) goiter and I have long thought adrenals as I have so many symptoms Also correlate with uric acid and mine is quite high.

Despite being a vegan I actually had 6 gout attacks in 6 weeks recently prior to this I had 2 a year and they went away when I took cochicine (the only drug I take as it is just a few times a year and the pain is so excruciating) but now taking 6 days to go away then a few days later it is back.

Also had excessive thirst and urination an figured it was diabetes but I had this for 20 years before diagnosed so now I an thinking omg. this explains the multiple brain problems like depression, anxiety, confusion, memory loss, and maybe other ones. It had seemed multiple parts were malfunctioning and then I hear this can mess up your brain.

And wondering why my calcium is so high for me as I always thought I was low. I never drank milk in 35 years and I never take supplements and as a vegan do not eat diary. Why was it at the top end,..it must be that gland and a tumor,

Also I had a lump in the throat that got so bad I was choking on my food and that is when they found this goiter which is enlarged and then I come to find it is usually located in the back of the thyroid or in the thyroid, I am thinking that is what I felt. And also might explain the large size of thyroid. They said it was reflux but i had no symptoms and now come to find out this tumor cases reflux..

Fixing this could change my life DRASTICALLY but the doctors are as you say completely on the wrong track.

I saw one today and she refused to give me a referral to a man who I found out did the minimally invasive surgery for a consultation and hopefully more testing. I did not want to talk to her as she is not an expert and could not answer many of my questions,

She gave m,e advice opposite his like take vitamin d in high dose (I was super deficient recently) but the doctor at parathyroid,.com said this could cause a stroke if you have it and be dangerous and also do not take calcium and even dairy products and they put me on both. I am not sure if I should take it or not

She said something which made me know she did not think I had it and thinks it is cause of the low vitamin d but this is also caused by the parathyroidism I could tell she did not believe anything I said even though I knew a lot on it and am in the top 1% IQ and not stupid.

I also had radiation and they radiated part of the area of the chest and neck and said because they had to give me more radiation (for cancer) than normal, it bounces off the equipment and can cause a cancer or maybe a tumor (cant remember in the glands in the neck..everything I read points me to this..the long last solution but I unfortunately like you have the symptoms but not the levels they want.

I might never get help as they all think they know and they do not.

She was going to give me an oxidized calcium test and then said no (and I think she mumbled its the vitamin d (ie the cause) and then I said that is the test that that expert said to do with the group i am in and then she decided to do it..as she said oh it is too expensive I know she thinks the symptoms are nothing by the way she acted. But I am also 90 % something convinced she is wrong I had it and I do not want to die 6 years sooner and get osteoporosis and break my hip and suffer another 39 year s(wont live that long) with depression and all that.

I feel at the mercy of these people who will not spend enough time to figure it out. They are not the ones living with the terrible symptoms.

It is so sad when we can;t get anyone to listen, I am just starting out she is the first doctor I spoke with and it was so full of disappointment but at least she ordered some test. I only pray they come back strongly positive as if they said it is ok (and 40 % are incuorrect

I almost killed myself from the clinical depression and worry endlessly and I am losing memory and I get up every hour when sleeping which then cases more stuff and a host of things that I would have such a wonderful quality of life if things I had for decades were suddenly gone. I feel God has finally answered what is wrong and no darn doctors are gonna know what to do, I cannot afford to go to Florida.

I cannot believe you have been to 15 doctors and noone listens or helps..you have to fight so hard to be heard and then they think oh you are just crazy or something.

We know..Shelly may god help us if we have this to find someone to help us.

If noone does I did see that yellow dock may help glandular tumors but going to wait to see if I can get hep first.

Do you feel taking vitamin d or calcium is good or bad, The guy said dangerous and they are loading me up on it..she told me to not take any vitamin d or calcium prior to the 24 urine and I could sense this was cause she was already convinced I don't have it and not wanting to deal with me being insistent and is hoping the test will show nothing so she can say lets just wait and see another decide...I am wondering if I should maybe take it as I think she is thinking this will make the calcium lower,.

I had to repeat this 3 or 4 times as she kept asking it over and over.

I was not taking calcium supplements when i took the test, I am not sure why she did not comprehend this.

I could just ell this is the only appointment where she will try a few things..once that test comes back if it is not overloaded with calcium she will say oh that is not your problem just take these supplements..to not even give me a referral that I need from her is cruel I feel.
She id agree to try to find an endocrinologist who specializes in it but I suspect she will not try that hard or find one.

Luckily I did get a referral from the nurse practitioner to a doctor who I think does the minimally invasive one and graduated with honors and even lectured on the topic but she would not give me that referral I was practically begging her and she would not bulge..I even started crying nothing..finally she said ok, I pray to God he is good and will work with me as I may never get a referral again.

If they were suffering from 19 things that could be fixed in a day then you can be darn sure that they would be on his appt list stat..they do not understand how it is no live like that...no energy ever and all that..My doctor is on maternity leave and I hope when she gets back she is more into hearing what I am trying to say..I do not know her well but so far she sees to try and she listens and maybe I can get help come November or December I only hope she returns as this is her first child and she may change her mind and then I am back to square one as I have had nothing but crappy family practice doctors the last 3 years she was the best I found. I guess if noone helps there I can try another pcdoctor who might eventually get me to the right person but I sure wish I could go to Florida and was one of the clear cut ones that they believed had it.

They think the patients know nothing but she spend a lot more time knowing our symptoms and researching than they do with their 5 or 10 minutes on your case and then on to the next,

If you are complicated forget it..you are screwed

I do not know how to treat this naturally.. how can we get rid o a tumor?

I am thinking this is why nothing work for me ..it just is overriding the lifestyle changes I am making --others who have made changes I have feel great..I always like like crap no mater what i do.

Now I know why..if you are still on here please answer so I know I am not alone and someone else is here going through it for support and helping one another. This forum is so dead.

Any help by anyone would b appreciated.