Hi Tuffydog,
I've been there and done that! I had the Mirena in for about 7 months before I started to had anxiety attacks, severe heartburn, chest pain, aching joints, back pain, heart palpitations REALLY bad. I thought I was litterally having a heart attack. I went to my M.D. and she ran blood tests, ordered an ultrasound, upper GI series, and an EKG. All was normal--except for the EKG and an elevated cholesterol level. I was hoping I would get more of an answer for why I was feeling so bad! I was to the point, I wished it had been gall stones, so I could just have surgery and be done with it. I spent many moments trying to figure it out. I was clueless for a little while. It then dawned on me that maybe it was the Mirena. I loved it for the first 7 months. I almost forgot I even had it. I was almost in denial and hoped it wasn't my birth control. I eventually called my gyn to report the symptoms. They told me there was no way it could be the Mirena. I told them I still wanted the Mirena out just in case it was. I am not sure why, but they discouraged me from the removal and asked me to give it another week (after results of bloodwork came in--mentioned above. They said to go to the ER if I had another attack. The more I thought about it and the more I suffered, I was certain that it had to be the IUD. I wanted it out! I had another attack and went to the ER and told them the same thing and asked them to take it out. They refused and said my gyn had to do that. I called first thing on a Monday morning to report the ongoing symptoms, again they transferred me to a nurse. I hung up and called back and told them I did not want to be transferred, they were aware of my symptoms. I didn't even need to explain myself, it was my body and I wanted this Mirena out!!! They then took me seriously and gave me an appt.for that Thursday. They wanted to person who put it in to be the one to take it out. She only worked on Thursdays. (That was the longest three days ever--I was living hour by hour--just miserable, confused, and scared.)
Even in the gyn's office, the nurse told me it wasn't the Mirena. It seemed she try to make me feel that I didn't know what I was talking about. She even stated that she had never heard of these symptoms before. At this point, I really didn't care what she had to say, and I let her know that. I told her that it was my body, and I wanted it out now whether she felt it was the Mirena or not. I told her I could be the judge of that!" I know she thought I was a real B----. I didn't give a rat's butt anymore. I was tired of wondering if I was going to make it through the night or die in my sleep. I did tell my husband, if I don't wake up in the morning,please don't let this go...something needs to be done about/with the manufactuers of Mirena. I lived everyday for 3 months thinking there was something major wrong with me. Needless to say, it has been out for about 6 weeks now. I can say that the symptoms are still there. I have almost good days and still some really bad days. The anxiety comes out of nowhere. It's still really freaky! I am scheduled to see a cardiologist because my heart still starts acting up, but I have not had an anxiety attack since removal. I feel my better days are a little more now.
My MD has also scheduled a CAT scan. This has been a total nightmare for me and is costing me a fortune in copayments! I wished I never listened to all of the "glory" the gyn staff and Mirena website gave it. Ironically, minutes before insertion, I had to sign a waiver to not hold the gyn or staff members liable for the insertion, duration, and removal of the Mirena. I should have seen the writing on the wall, but at the time, I was willing to give it a try, and I was told it was safe with only side effects of weight gain and loss of menstration. What a big lie! If I could go back and change things, or if I had found this site first, I would have never had one placed. For now though, I can honestly say, I am glad I had the damn thing removed when I did...and I am glad I didn't allow the gyn's nurse to talk me into holding off again. I just don't know where I would be right now if I had left that thing in any longer. I feel it was slowly killing me! Listen to your body and be strong...it's not worth sacrificing or having permanant damage for the sake of the Mirena. Good Luck! Kerri