Mayo Clinic 
mom2TnE
15 y
3,939
Lugol’s Iodine Free S&H
J.Crow’s® Lugol’s Iodine Solution. Restore lost reserves.
Mercury Detox
Dental work and fillings, not a problem.
Clarkia Extra Strong
Clarkia Tincture 2 oz, 4 oz, 8 oz, and 16 oz
So I went to my GP yesterday. She is supportive but baffled. She doesnt know what to do. I asked her about some of the stuff from here - silicone poisoning, cortisol levels, candida, autoimmune responses to mirena, etc. and she says she doesnt really know enough about all that to try to speculate nor does she think anyone else in our smaller city will.
She suggested sending me to Mayo Clinic to get looked over there. She feels that if anyone in the midwest united states knows anything about any of this, it would be them.
But if they could actually help.......... or if it would bring attention to our cause...
Just wondering if anyone has any experience with Mayo.
StaciAdvertisement
Bio Cleanse Detox Kit
”I was surprised by the effectiveness of it, and I wasn’t hungry.”
More
- Re: Mayo Clinic Jane123
15 y
3,523
MoreThis is a reply to # 1,471,524I'm from Minnesota and the Mayo Clinic is the best! VIP's from all over the world travel to the Mayo for treatment. If you have insurance or can afford it, go!!! They use a multidisciplinary approach. You won't be evaluated by one doctor, you'll be evaluated by a team of different specialists. Keep us informed...
- Re: Mayo Clinic mom2TnE
15 y
3,562
MoreThis is a reply to # 1,471,546Thanks Jane! Small world, I am in Iowa. We have very good University Hospitals in Iowa City, but the neurologist guy there was less than helpful with my symptoms, other than to tell me he was positive it wasnt MS. My doctor says she wants to start with neurology at Mayo because of the parasthesias (tingling, numbness) and because of my headaches and dizziness.. and says if they need to send me to the rhumatologists up there once I get there then they would... I am highly considering it. My main reason holding back is 1- fear they cant help me and 2- I have the kids and right now, my mom is very busy taking care of my grandfather on his deathbed out of state and I hate to add something else to her plate right now (because she would obviously have to help me and someone would have to go with me, I dont trust myself to drive that far anymore).
- Re: Mayo Clinic nile
15 y
3,339
Lugol’s Iodine Free S&H
J.Crow’s® Lugol’s Iodine Solution. Restore lost reserves.
Mercury Detox
Dental work and fillings, not a problem.
Clarkia Extra Strong
Clarkia Tincture 2 oz, 4 oz, 8 oz, and 16 oz
This is a reply to # 1,471,558Advertisement
Bio Cleanse Detox Kit
”I was surprised by the effectiveness of it, and I wasn’t hungry.”
Last time I was at my doctor feeling lousy, he said if it didn't improve, he was pretty much out of ideas, and would refer me to either Mayo or the Univ of MN (I live in a suburb of Minneapolis). Thankfully I've been feeling better the last couple months, but if it goes downhill again, I would definately go to Mayo. I have 2 close family members that have greatly benefitted from going there, and an aunt who works there. Keep us posted if you go, I would be very interested to hear what they come up with for you.
Best wishes,
-Nile- Re: Mayo Clinic karita
15 y
3,318
Mercury Detox
Dental work and fillings, not a problem.
Clarkia Extra Strong
Clarkia Tincture 2 oz, 4 oz, 8 oz, and 16 oz
This is a reply to # 1,471,961Has anyone kept in touch with georgieb? She had said she went and it was very unhelpful. I wonder if you are still out there?- Re: Mayo Clinic lisa0819
15 y
3,291
Mercury Detox
Dental work and fillings, not a problem.
Clarkia Extra Strong
Clarkia Tincture 2 oz, 4 oz, 8 oz, and 16 oz
This is a reply to # 1,472,050Staci,
When your mom is able to help I would go to the Mayo clinic. It's worth a try and you have nothing to lose, and alot of information to gain! Again, I would be very happy if I were you that it's not MS. That is really something to celebrate. Hang in there....
Hugs,
lisa:)
- Re: Mayo Clinic lisa0819
15 y
3,291
- Re: Mayo Clinic karita
15 y
3,318
- Re: Mayo Clinic nile
15 y
3,339
- Re: Mayo Clinic mom2TnE
15 y
3,562
- Re: Mayo Clinic georgieb
15 y
3,211
Lugol’s Iodine Free S&H
J.Crow’s® Lugol’s Iodine Solution. Restore lost reserves.
Clarkia Extra Strong
Clarkia Tincture 2 oz, 4 oz, 8 oz, and 16 oz
Mercury Detox
Dental work and fillings, not a problem.
This is a reply to # 1,471,524I did go to Mayo and it was not at all helpful. I blame it on the specific doctor I saw and not Mayo, but he did not dig at all. I know that it is extremely difficult to diagnose a myriad of seemingly unrelated symptoms, but I really feel that they did not even try. I think that if you look healthy enough and there is no hard evidence of a problem, then doctors do not feel compelled to dig. The worst part is that I now tell doctors that I went to Mayo, and they wonder why I am even coming to see them when Mayo couldn't help me.
I only went to Mayo because it is only a few hours away and I had family to stay with, and I had excellent insurance that covered the expenses. I cannot imagine how angry I would be if I spent a fortune and came back with no answers.
Sorry to be so negative. I am anxiously awaiting the day when someone finally figures out the problem and I can send a letter to Mayo and tell them what they missed!
- Re: Mayo Clinic mom2TnE
15 y
3,127
Mercury Detox
Dental work and fillings, not a problem.
Clarkia Extra Strong
Clarkia Tincture 2 oz, 4 oz, 8 oz, and 16 oz
This is a reply to # 1,472,776Advertisement
Bio Cleanse Detox Kit
”I was surprised by the effectiveness of it, and I wasn’t hungry.”
Do you know what department you saw at Mayo? My doc was suggesting starting with neurology, but I was just wondering where you started... as it sounds like that may not be where I want to be!
How many of us are in the upper midwest? It seems like a lot!!!!!!!!!!!!- Re: Mayo Clinic georgieb
15 y
3,347
Lugol’s Iodine Free S&H
J.Crow’s® Lugol’s Iodine Solution. Restore lost reserves.
Mercury Detox
Dental work and fillings, not a problem.
Clarkia Extra Strong
Clarkia Tincture 2 oz, 4 oz, 8 oz, and 16 oz
This is a reply to # 1,472,781I saw ENT and GI specialists. I forgot to mention that I went to the Mayo in Jacksonville. It is very well-run and very different from your typical doctor's experience. They order a ton of tests in a short amount of time, all in the same buildings, which is nice. The problem is that we need doctors that will not give up when the tests come back normal. I have yet to find a doctor that agrees that the Mirena could have anything to do with my problems, but I still believe that it is at least partially responsible. There are too many similarities between all of us suffering out here!- Re: Mayo Clinic mom2TnE
15 y
3,161
This is a reply to # 1,472,795I called the doctor today and left a message that I want to go to Mayo. I do believe she is going to start me with a neuro because of all the parasthesias and also my migraines/dizziness that have been going on since before mirena...
I will let you know details once I hear back from her.
- Re: Mayo Clinic lisa0819
15 y
3,055
This is a reply to # 1,479,532Advertisement
Bio Cleanse Detox Kit
”I was surprised by the effectiveness of it, and I wasn’t hungry.”
Hi!
I'm glad you are going ahead with it! How is your jaw pain? Are you still tingling anywhere? At least we have been having beautiful sunny weather in WA, so that definitly helps my mood. I was laying awake last night thinking about all these horrible side effects. It has to improve SOON for us....
Lisa:))- Re: Mayo Clinic mom247
15 y
3,180
This is a reply to # 1,480,097Lisa, I have been feeling the same way. I searched through old posts and printed a few recovery stories. When I am feeling really discouraged I read through them and they make me feel a little better. Knowing that these ladies were where we are and now are 100% better gives me hope. I think I searched "Mirena Recovery" or "1 Year Post".
Wishing you wellness...=)- Re: Mayo Clinic mom2TnE
15 y
3,138
This is a reply to # 1,480,130My tingling is much better, but that is because of the gabapentin my GP put me on. I know it isnt gone, before it was there every night.
Today I was shakey, real shakey, in my back. Also the weird jaw stuff is still there somewhat. And my legs were a little weak. Nothing as bad as when it was in though, but still not good just the same.
My dizziness and headaches will not let up.
I have been having awful issues with my seasonal allergies too - I have them very bad to the point of not breathing well - actually just went to my ENT today - of course he thinks I am nuts with the Mirena stuff, but I wasnt really there for that, just for my post nasal drip and all.
Best of luck to all of you. I will let you know when I get scheduled. It can take awhile from what I have heard.
- Re: Mayo Clinic lisa0819
15 y
3,202
This is a reply to # 1,480,271Advertisement
Bio Cleanse Detox Kit
”I was surprised by the effectiveness of it, and I wasn’t hungry.”
Hey,
Well, I'm glad you are on a drug that is helping you with the tingling. :))I feel so aggitated at times. I am going back to work next week job sharing only 1 day a week in a 5th grade classroom. I have been on a leave of absence for two years since having my daughter. I went to school today and prepared a few things and it felt great to see some friends at school because I had taught 8 years prior before leave and been positive, upbeat and a really happy teacher. I sure hope this gives me a little confidence back! I feel like I walk around with a t=shirt that says," I am suffering horrible side effects from the Mirena and I mope around!" Well, have a super weekend!!
lisa- Re: Mayo Clinic mom2TnE
15 y
3,139
This is a reply to # 1,480,856Thats awesome you are getting back into the classroom. I agree, I feel like I wear the same sign. I feel so badly because when I take my son to K each day, I feel like I want to stay, and help, and do what I so love. But I also am still dealing with so much of this, I am scared to walk into a room full of strangers who dont understand and feel badly... its a vicious cycle of suckiness. I have signed up to help with their first 'party' morning in a few weeks adn I am hoping I can do it.
- Re: Mayo Clinic lisa0819
15 y
3,158
This is a reply to # 1,483,387Hello,
Oh! I really hope you can help for your daughter's "Party morning!" Let someone else take charge and just commit to bringing 1 thing and a small job at the party! As a teacher, a little help is better, than no help! I guarantee once your in the classroom you will have a great time and hopefully forget about the symptoms for a little while! Good Luck and keep me posted! What a fun age!:)) My first day with kids was today and I am exhausted!!!! Yesterday I felt horrible, tingling, itchy nose and achey...today better! Tomorrow Healed....I can only pray and think positive...:))) Take care of you!
Hugs,
LisaAdvertisement
Bio Cleanse Detox Kit
”I was surprised by the effectiveness of it, and I wasn’t hungry.”
- Re: Mayo Clinic lisa0819
15 y
3,158
- Re: Mayo Clinic mom2TnE
15 y
3,139
- Re: Mayo Clinic lisa0819
15 y
3,202
- Re: Mayo Clinic mom2TnE
15 y
3,138
- Re: Mayo Clinic mom247
15 y
3,180
- Re: Mayo Clinic lisa0819
15 y
3,055
- Re: Mayo Clinic mom2TnE
15 y
3,161
- Re: Mayo Clinic georgieb
15 y
3,347
- Re: Mayo Clinic mom2TnE
15 y
3,127
- Re: Mayo Clinic Jane123
15 y
3,523
Share:
Translate This Page: