Surgery Scheduled 
Jennyj221
15 y
2,539
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My experience is much like the rest I read here. I had my IUS inserted January 2nd of 2008. As expected I bled for about the first six weeks and then had no more bleeding or periods. I did however have several of the symptoms posted on here such as depression, fatigue, insomnia, numbness in my toes, horrible headaches, nueropothy, etc. I never linked those to my IUD because I had been diagnosed with fibromyalgia years ago. Anyway, long story short, I bagan bleeding profusely around eight weeks ago. This was no normal bleeding, it was fresh blood and in large scary amounts. I am a trainer and it has gotten to the point where I was afraid to laugh or sneeze in fear of looking like a murder victim. At one point in the middle of teaching, I started bleeding so bad it went down my leg and all I could do is walk out of the room. Anyway, as of yesterday I had gotten to the point where I was so fatigued that all I could do is sleep. I called the OBGYN who got me in first thing this morning. The did a pelvic exam and could not find the threads, he attempted to use forceps and still could not find it blindly. He swore that it probably fell out. Upon my insistance, they did an ultrasound and could somewhat see the Mirena in the top of my cervix or so they think. They also discovered a cyst during the ultrasound. The doctor tried for almost an hour to remove the Mirena even using a scope and forceps at the same time with no results. He has not referred me to the hospital where I am having surgery to remove the Mirena and the cyst, they also want to do a DNC and a tubal at the same time since they think it may have caused damage. Wish me luck, I am so nervous and scared. The thing that worries me the most is surgery being a couple weeks meanwhile I am bleeding uncontrollably to the point of anemia. I would love to hear from anyone has had this same experience with the surgical removal. Did the doctor suggest a DNC? Did you have cyst? Was a tubal suggested? thanks for all your help
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- Re: Surgery Scheduled DMirena
15 y
2,251
MoreThis is a reply to # 1,398,636I just had my mirena surgically removed on Wednesday. They did a laparoscopy procedure and went in through my belly button. Mine went through my uterus and was hanging out in my abdominal area. I did have some of the same issues you mention but my bleeding wasn't as heavy. I was bleeding off and on for 4 months and finally couldn't take it anylonger. I feel better already...just knowing it is out is a relief. Good luck....
- Re: Surgery Scheduled Jesse1188
15 y
2,444
This is a reply to # 1,398,857Ladies, who put your Mirena in? I am fortunate to be married to an MD who could do it for me - makes sense, because he really knows my anatomy. Even so, he carefully measured my uterus with a sound both times he put Mirena in.(I've had 2 over the course of 10 years, the best years of my life, because I became period-free after the first few horrible months with mood swings, sore and swollen breasts, acne, etc. which hubby warned me to expect)The dr. has to know exactly how deep the uterus is and then gently insert Mirena to exactly the measured depth before removing the tube. Hubby pulled the second Mirena out the other night, because it had been in for 5 years. I didn't feel anything. At almost 48, I need to find out whether I am now menopausal. waiting to see if my period comes back. I hope not! I became quite attached to my Mirena.(Fortunately it did not become attached to me!) I cannot believe what you had to go through by getting it surgically removed. really, a doctor just has to be thorough and gentle. Side-effects will vary from person to person. If it's not for you, get it out.
- Re: Surgery Scheduled mamaj
15 y
2,183
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This is a reply to # 1,399,471Hello Jesse,
Can I ask if your husband has an opinion about the side effects? I know most docs arent commenting-other than that they "can" happen....
I can't decide if it is from not ovulating (thus, no progesterone production), the side effects of levongestrel, or the possibility of silicone toxicity (since it is actually used as the time release mechanism-a gel I believe). The problem is, our syptoms match all 3 causes.
It is very difficult for our doctors to treat our symptoms, because noone seems to know which of these factors (or a combination of them) is causing the majority of our problems.
If we could get a professional MD to hypothesize, it might be much easier to work with our own docs. (for those of us lucky enough to find ones who understands/admits it). Since you had sisters who had side effects, it might be easier for him to formulate a theory, than a doc who sees us for only a couple minutes every couple of months.
If he could give us a leg up, that would be fabulous! Totally understand if he doesnt want to get involved, but some of these gals are having a really tough time getting help....
- Re: Surgery Scheduled Jesse1188
15 y
2,329
This is a reply to # 1,399,954Hi mamaj
My husband says all the symptoms you mentioned are possible and legitimate and that I am just one of the lucky ones who had a few side-effects to the Mirena in the beginning due to the higher levonorgestrel initially and nothing after that. He says women who have allergies to silicon, etc.,may have lasting side-effects. They cannot really explain why. No two women are the same and there is no 100% safe one-size-fits-all contraceptive. (EXCEPT VASECTOMY, BUT EVEN HE WON'T GO FOR THAT!!! DO THESE GUYS REALLY LOVE US???)
The combination pill birth control almost killed me due to the estrogen. I had horrible side-effects and developed blood clots. A young doctor in Quebec recently died from stroke due to "The Pill".She left a husband and two little children. Did "The Pill" really bring us sexual freedom or are we now less free because we face unrealistic expectations from our partners who believe we should take 100% responsibility for contraception, nevermind the serious and sometimes deadly effects on our bodies? I don't have that answer.(This is my feminist side talking!)
Anyway, back to business. My husband has seen first hand how the same contraceptive have many different effects on different women. He says they don't really know why, that is why drs. are so vague. I have a friend who became suicidal after she had Mirena inserted (on my recommendation!!) Fortunately she recognized the symptoms for what they were and she had it removed. My one sister is also a MD and she had non-stop bleeding, that's why she got rid of it. I, on the other hand, had no bleeding. Go figure.
The bottom line is that you have to shop around for contraception that works for you ...or bully your partner into a vasectomy! Do you know any man who will willingly pop a pill every day to sabotage his natural hormones or get a device stuck up his penis or implanted in his testes as a contraceptive contraceptive? I don't think so!! LOL Oh well, at the moment my contraceptive is to cross my fingers...and I told my husband if I get pregnant, the baby is 100% his. The ball is in his court now, I've done my part for 20+ years.
- Re: Surgery Scheduled Jesse1188
15 y
2,329
- Re: Surgery Scheduled mamaj
15 y
2,183
- Re: Surgery Scheduled Jesse1188
15 y
2,444
- Re: Surgery Scheduled DMirena
15 y
2,251
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