32 feel 92 when will i feel better? ... 
lulu123
16 y
1,635
Found this site by chance after scouring the internet for an answer to my symptons and was so grateful. Thought i had parkinsons, altzeimers , ms or maybe just going crazy, just as an after thought i typed in mirena side effects. Cant believe there is so many other women suffering because of this awful and what i now think should be illegal device what they give to women with no mention of the damage it can do to your body and mind. Have had mirena for 3 years but started to notice things around last october my memory was becoming really bad , had trouble concentrating and always feeling extremly tired, things have steadily become worse seem to have aged quickly my face seemed bloated and was easily irritated and moody , have always been a laid back fun loving kind of girl. Started to feel i couldnt cope have had days off sick which i now notice seem to be around the same time of month. Went to doctors last month with awful symptons and ended up crying he seems to think they were stress related as all my bloods came back normal. I then developed tingly arms and feet, very weak legs to where i could hardly stand up and muscles seemed to be twitching. I then began to feel very scared and went back to the doctors with a list of my symptons as i couldnt trust my self to remember them all as my head felt so foggy and told him id found this site and could mirena be to blame ,this was 2 days ago my doctor said no t'he mirena is not to blame and seemed to find it amusing and said it was anxiety, offered me an anti depressant. Told him i didnt agree and had mirena removed the same day. Has been the worst and most horrendous time of my life felt like i was dying. I have been 1 day since removal now and can definately think clearer and my memory also improved, people have commented on face being less bloated. I stiil feel very scared though as my arms still feel numb and tingly and have been lay down all day because of my weak legs. Has any one else had this problem with arms and legs and if so how long did it take to improve? I have 2 children and need my energy back,I feel so exhaused . I cant believe the damage mirena can do to so many womens lives and no one seems to believe or acknowledge it. Will be very gratefull for all replys. Many thanks.- Re: 32 feel 92 when will i feel bett... givinup
16 y
1,668
This is a reply to # 1,151,533Hi Lulu123,
I'm glad you found this site and got your Mirena out. I just wanted to let you know that I had tingly arms and legs and weakness in my legs along with extreme fatigue, dizziness, and a multitude of other symptoms. I am 3 months post removal and doing better, but still not 100%. The tingling has gotten much better. I haven't had the extreme leg weakness in about a month. I am hoping that it won't come back. My symptoms seem to cycle, but it is getting longer between relapses of symptoms and I'm hopeful that they will be gone forever soon. Oh, I had major twitching too and that has also improved a great deal. My left eye still twitches several time every day, but the twitches througout the rest of my body are much better. I hope you see a speedy recovery. These symptoms can be very scary. I was also convinced that I had MS or ALS or some other debilitating disease. I still have my days when I think I'm dying of something, but not as often as I used to. Good luck!- Re: 32 feel 92 when will i feel bett... lulu123
16 y
1,466
MoreThis is a reply to # 1,151,543Hi, thanks for your reply. That is very encouraging to me. The mirena causes such real and very scary symptoms but mow after the initial relief of finding out whats wrong with me i feel very angry that my doctor was so dismissive of my problems. He even suggested that sites like this were for neurotic women, implying that if symtoms subsided after the mirena removal it was just pychological. I guess this is the attitude of a lot of doctors all over the world. After reading all these awful experiences of you all on here i don't have much faith in doctors and will be going down the alternative health route from now on. Take care and good luck!
- Re: 32 feel 92 when will i feel bett... meat27
16 y
1,727
This is a reply to # 1,151,543Hey Givinup, I just had to reply to your message cause I have been really scared of having ALS. It doesnt help that my uncle is dying of it now. I am 4 months post removal and I was doing better at month 3 than I am now. Its like it all came back about a week ago. I was to the point where I thought I was going to be okay, but now im back scared again. My left leg is weak, my knee hurts, I wake up with my leg and arm numb and it feels different when i swallow again. Oh, and my muscles are twitching again. i am just extremely frustrated cause I thought I was feeling better. I finally felt some peace and now im scared all over again. I just dont understand how this could happen. Do you still have the weakness? You are the only one on this site that has mentioned ALS. Lots talk of MS though. Have you been to the doctors and had tests done? I hope your doing better and i hope to hear from you soon.
- Re: 32 feel 92 when will i feel bett... lulu123
16 y
1,466
- Re: 32 feel 92 when will i feel bett... ramiau3
16 y
1,758
This is a reply to # 1,151,533I have terrible numbness in my legs and have been for years. Some nights are better than others, but I almost always sleep with my legs up. I twitch and my legs spasm all night long. I often kick my boyfriend. When I wake up and move around the feeling returns to my legs. Yesterday morning when I was getting ready for work my knee just gave out on me. I just caved under my own weight. It was so painful, I almost fainted it hurt so bad. I sprained my knee very badly and am now on crutches and my knee blew up twice the size. I am not sure that the knee giving out is related, but I am very sure the the leg numbness is. I never had it before having the Merina put in almost five years ago.
- Re: 32 feel 92 when will i feel bett... shelby001
16 y
1,477
This is a reply to # 1,151,533Lulu: I had to respond to your message, your symptoms were just like mine. I was seeing a neurologist and psychologist for 3 months because of my significant memory loss and confusion. I had CAT scans, EEG's and every conceivable blood test that is out there. I was so tired ALL the time, my body hurt everywhere. Doctors were looking for MS/chronic fatigue/fibro Mayalsia/Dementia/lyme Everything. But what they told me that it was NOT the Mirena. I started having symptoms 2 weeks after having it put in and I called right away. She told me to go back and read the brochure again. (my symptoms, of course, were not listed on the brochure) I gained 25 lbs. in 6 months. The Depression and anxiety were terrible. I pretty much became agraphobic (sp) I was afraid to drive, afraid I couldn't take care of my kids, I was afraid of everything because I didn't know if I was doing anything right. I was forgetting who people were, confusing people thinking they were someone else, and forgetting who people were like I never met them before. It was REALLY scary. Oh, and my hair was falling out in handfuls, I probably lost 1/3 of my hair. After finding this site I printed alot of posts that were similar to my story and brought them into my OBG/YN, I have to say she sat and read them all and almost cried, she truly felt terrible. This is someone I have been with for 20 years and brought all three of my children into the world. So anyway, Mirena came out and one year later I have absolutely no symptoms at all. The memory and confusion were gone right away - other problems took more time. So try not to worry too much, be glad you had it taken out and give yourself time to recover. I am still so thankful for this site, I may never have known what was wrong with me. Good luck and be patient.
- Re: 32 feel 92 when will i feel bett... aussiegirl80
16 y
1,485
This is a reply to # 1,153,697
Hi Shelby001
Thank-you for your post it gives me hope i had symptoms just like you how long did it take for your other symptoms to go i am 5 months post removal and still getting some symptoms it feels like its never ending thanks heaps xx
- Re: 32 feel 92 when will i feel bett... shelby001
16 y
1,446
This is a reply to # 1,153,707I would say it took about 2 or 3 months before most of the symptoms were gone. The memory and brain fog were gone almost immediately. My hair continued to fall out for probably 6 months after removal (its since stopped and growing back. I have 1" long frizzies all over my head, yay!) The only symptom that lingered for almost 9 months is anxiety right before my period. Now that has also stopped. I've been working hard to drop the 25 lbs., it has not just dropping off me like some say it does, you definately have to work at it. I have about 7 more pounds to go. I have my energy back, I feel great. I have a very positive outlook on life, where before I was wishing that if I were dying, that it would happen very fast and spare my family a long drawn out thing. How bad is that? Never had Depression or anxiety or any of the other symptoms until I had the Mirena. Hope I answered your questions.
- Re: 32 feel 92 when will i feel bett... shelby001
16 y
1,446
- Re: 32 feel 92 when will i feel bett... lulu123
16 y
1,406
This is a reply to # 1,153,697Hi Shelby thanks for your reply it was very positive and gives you hope that a full recovery is possible after those horrific symptons. Glad you are better and your hair is startin to grow back. I am so grateful for this site too becauuse if i had not found it i would still have the awful thing inside me and im sure symptons would have progressed and i wouldnt of had a clue to what was going on. Ended up going back to the doctors on friday two days after removal as seemed to of worsened had pain all up my back could hardly stand, shooting pains going up and down my legs was constantly goin for a wee and really really thirsty , this time i saw a female doctor who was very good and seemed to believe that mirena could be to blame, she said if so the hormone is still in my system so i need to give it time to get out and the best things i can do are to eat healthily, drink lots of water rest but keep muscles moving by walking about and stay positive. She did say she wanted to do further blood tests though to rule other stuff out which i expect to come back negative. ON day 5 now i have just been for an acupunture treatment today to see if that helps the recovery figured it would be money well spent if it gets me well quicker and back to work, i do feel it has helped, he thinks he can help get me back on track and am goin again next week.
Do feel an improvement on last week am more positive and dont feel like im at deaths door. Thanks again for your uplifting reply, glad you are finally through it,and i will try to remember that its gonna take time on any bad days i have to come! Take care xx
- Re: 32 feel 92 when will i feel bett... aussiegirl80
16 y
1,485
- Re: 32 feel 92 when will i feel bett... givinup
16 y
1,668
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